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Joe Catalano
ParticipantThank you for your explanation to Sheila was very thorough and gave some good insights for a lot of us
ParticipantI was diagnosed with low risk of the US in June my red blood cell count is low my hemoglobin is 10. White and platelets were normal. If my hemoglobin jobs pulled all night and the doctor will treat me with a aranesp at to increase red blood cell production. I doctor from Memorial Sloane Kettering is not treating me until I need treatment we are on watch and wait.
ParticipantThank you for that info
ParticipantThank you very much for responding rise and for explaining everything. I hope you are able to find a job that works for you good luck and more than luck God bless.
ParticipantSince I joined the message board I find it helpful to hear it was going on with others. I am a bit surprised to find people asking what treatments they may try. I am on watch and wait I have a doctor at Sloan Kettering and I trust that he will guide me along the way. Do others not feel that way or am I being naïve
ParticipantYes. Beautiful. Thank you.
ParticipantRod Your numbers seem pretty good. Best of luckand thanks for getting back to me
ParticipantRod, I would love to know who your oncologist is but I understand your reluctance to mention his name is he affiliated with a center of excellence or a large MDS hospital?
ParticipantKaren, Are you asking me if I get aranesp or are you telling me not to get it
ParticipantRod. I do know that some things are not in our hands and it’s good to be reminded of it.Go to her place my trust in God’s hands sometimes the fear and the exhaustion get the best of me but thank you again I do pray for all of us and of course will include you Rod in my prayers. God bless !
ParticipantKaren, thank you very much for letting me know that.
November 8, 2021 at 8:13 pm in reply to: People who were diagnosed with low risk MDS six years ago or more #56463ParticipantThank you for the feedback
ParticipantI’m replying to my own post I pray for all of us that the medical community can come up with some better treatments for us very soon.
May God bless us.November 8, 2021 at 5:11 pm in reply to: People who were diagnosed with low risk MDS six years ago or more #56459ParticipantWhen were you diagnosed?
ParticipantI was diagnosed with low risk and he is three months ago anticipating injection of our nurse but so far not needing it and I am on watch and wait. I too am hopeful that the longer you can postpone treatment or stay on the treatment new therapies will be developed tonight even more helpful than those currently known. Best wishes to you
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