Forum Replies Created
-
AuthorPosts
-
February 21, 2024 at 10:06 pm in reply to: Confused – NEW diagnosis low grade Myelodysplastic Neoplasm #67012
Joe Catalano
ParticipantWho did the bone marrow biopsy? Is that a doctor an oncologist or hematologist go to him or her and ask what they can do for you after they made their diagnosis
ParticipantWhen was she first diagnosed? How long was she on the Darpapoetin. an MDS website, they usually will show you a paradigm for treatments, and which one needs to the next.
I’m not a doctor. I’m a patient, but I’ve seen many steps of treatment following lustpatwrceptand combinations.ParticipantI was diagnosed with MDS in June 2021. Went to Sloane Kettering and they did a bone marrow biopsy. The doctor said it would take at least 2 to 3 weeks so that I would not be impatient and it did take that long. The specimen of the bone marrow must be examined by several people for several Diagnosesof it. waiting for results is a difficult process but the only thing you can be is patient.
ParticipantThank you I just read this for the first time so I haven’t tried what you suggest but it sounds inviting and I have a sense it will help. I sounds like you films. Something that works well for you. Thank you for sharing. Best wishes to you God bless.
ParticipantThank you, Jimmy and Ashley for your comments. It’s good to know from people who have had or know someone who’s had the experience. I know a lot about the second opinion doctor I’m going to see and I like him and trust him very much. I’ve been on the fence and you have helped me move a little bit off that fence. With a good experience with the doctor, I should be able to make a more confident decision
ParticipantGood look to you on the treatment and good luck to us on all of the treatments that we get. God bless !
ParticipantThank you all for your replies just an update here I begin increased dosage from 300 to 500 units of our nurse two weeks ago.
So far, my red blood cells and hemoglobin are remaining about the same; no increase in either. Don’t know if that’s important to anybody but if you’ve got something to add, please let me know. Thank you.ParticipantWas MD Anderson’s? Opinion the same as the opinion you’ve got at your current center. Would they be treating you the same way? If not, how would they be treating you?
ParticipantI recently started losing weight and it occurred to me that I I am on Ozempic for diabetes II. I’m going to speak to my primary care doctor about discontinuing the Ozempic. See if that is the cause of weight loss. I have been on Aranesp for four months. although my hemoglobin has gone up from 7.7 to 8.7 I am still feeling very tired and weak. I will be discussing the risks and benefits of increasing the dosage.
I offer this in case there is a drug that is being used that is causing the weight lossParticipantI know, I replied to your comment, and thank you. It was uplifting. A question that has a reason is, did they have to increase the dosage for it to do its work. My numbers have gone up a bit and slowly and my doctor and I have discussed the possibility of increasing dosage
ParticipantThank you for your reply Maggie. It was very encouraging. And yes I will be patient. I had read for six weeks, so I was expecting that, but it’s good to know that it will eventually kick in. Once again, thank you and best of luck to you and your husband. Good health.
ParticipantDiagnosed June 21, 2021 with low risk. Been on watch and wait and yes occasionally my feet and legs get very mild swelling. Could list a day could last a week hasn’t interfered with anything though thank God
ParticipantBeen on watching weight will be starting treatment with Darbapoetin. Hemoglobin dropped to 7.9 from 10.2 1 1/2 years ago. Everything has recommended exercise, but has not been prescribed as necessary. Do you know what your treatment is going to consist of? I’m just curious about that.
Thank you if you get back to me and good luck to youParticipantCan anyone share how low they allowed your hemoglobin and/or RBC to go before they begin treatment. I am on watching wait my RBC is now down to 2.32 and my hemoglobin is down to 8.4. I asked my doctor when he would be considering treatment and he said below eight. Does that sound similar to anybody else out there
ParticipantWhat treatments have you received and what treatments are you getting now?
-
AuthorPosts
