MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 15 posts - 1 through 15 (of 18 total)
  • Author
    Posts
  • in reply to: Treatment for low risk MDS -VS – No treatment #57309
    Joe Catalano
    Participant

    Thank you for your explanation to Sheila was very thorough and gave some good insights for a lot of us

    in reply to: Treatment for low risk MDS -VS – No treatment #57292
    Joe Catalano
    Participant

    I was diagnosed with low risk of the US in June my red blood cell count is low my hemoglobin is 10. White and platelets were normal. If my hemoglobin jobs pulled all night and the doctor will treat me with a aranesp at to increase red blood cell production. I doctor from Memorial Sloane Kettering is not treating me until I need treatment we are on watch and wait.

    in reply to: Low risk patient on HMA #57160
    Joe Catalano
    Participant

    Thank you for that info

    in reply to: Aranesp #57103
    Joe Catalano
    Participant

    Thank you very much for responding rise and for explaining everything. I hope you are able to find a job that works for you good luck and more than luck God bless.

    in reply to: Drugs to teat MDS #56774
    Joe Catalano
    Participant

    Since I joined the message board I find it helpful to hear it was going on with others. I am a bit surprised to find people asking what treatments they may try. I am on watch and wait I have a doctor at Sloan Kettering and I trust that he will guide me along the way. Do others not feel that way or am I being naïve

    in reply to: Dancing #56699
    Joe Catalano
    Participant

    Yes. Beautiful. Thank you.

    in reply to: IPSS and WHO scoring system #56694
    Joe Catalano
    Participant

    Rod Your numbers seem pretty good. Best of luckand thanks for getting back to me

    in reply to: IPSS and WHO scoring system #56534
    Joe Catalano
    Participant

    Rod, I would love to know who your oncologist is but I understand your reluctance to mention his name is he affiliated with a center of excellence or a large MDS hospital?

    in reply to: Blood transfusion and aranesp. #56533
    Joe Catalano
    Participant

    Karen, Are you asking me if I get aranesp or are you telling me not to get it

    in reply to: IPSS and WHO scoring system #56510
    Joe Catalano
    Participant

    Rod. I do know that some things are not in our hands and it’s good to be reminded of it.Go to her place my trust in God’s hands sometimes the fear and the exhaustion get the best of me but thank you again I do pray for all of us and of course will include you Rod in my prayers. God bless !

    in reply to: Blood transfusion and aranesp. #56509
    Joe Catalano
    Participant

    Karen, thank you very much for letting me know that.

    Joe Catalano
    Participant

    Thank you for the feedback

    in reply to: IPSS and WHO scoring system #56462
    Joe Catalano
    Participant

    I’m replying to my own post I pray for all of us that the medical community can come up with some better treatments for us very soon.
    May God bless us.

    Joe Catalano
    Participant

    When were you diagnosed?

    in reply to: New to the Foundation at 79 years old. #56396
    Joe Catalano
    Participant

    I was diagnosed with low risk and he is three months ago anticipating injection of our nurse but so far not needing it and I am on watch and wait. I too am hopeful that the longer you can postpone treatment or stay on the treatment new therapies will be developed tonight even more helpful than those currently known. Best wishes to you

Viewing 15 posts - 1 through 15 (of 18 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert