[Jim thomson]

I been off vidaza since July 2022-i still have neropothy in my right foot -fatigue -sore throat
My doctor is mostly mute on the symptoms – but my cbc test results been mostly good

[Jim thomson]

with my cbc test -blood ratios were mostly in normal range, the Doctor – now has me on once a month cbc test to monitor my ratios -and no more vidaza for now…

I only wish my symptoms would improve as my blood ratios….

[Jim thomson]

Dr. Lin:

I am not sure I am need of bone marrow transplant – I am sure -it is only matter of time b4 my blood ratios and what not drop, my worry is my body quits responding to vidaza injections, yes every 2 weeks they do
CBC blood test -which tells a lot

thanks

[Jim thomson]

I been diagnosed mds-mld -low since July 21–last month they did bone marrow biopsy -this is second one completed, first one was last December

right now my white cells are very low -platelet have come up some and red blood cells doing mostly ok

I have no clue where we are on possible bone marrow transplant -when I was at Mayo – they put me on the register – so when the time comes we might have donor.

and round 6 of chemo is in couple weeks

[Jim thomson]

thank you for your comments – it gets frustrating – I wish and pray for healing – I was diagnosed with MDS-MLD -July 2021–still have too many symptoms -remission would be great –

[Author]

Posts