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Happy for you. Transplant is good thing. Still praying for you.June 1, 2020 at 6:48 am in reply to: Vidaza to reduce spleen prior to Bone Marrow Transplant #51073
The spleen has to do with the red blood counts, it was the first thing they checked with Ultrasound. It was okay so I had bone marrow biopsy which showed intermediate MDS. I’m hoping for BMT soon and am also on vidaza. I will add you to my prayers.
I’m beginning my 4th cycle next week of vidaza. I’m getting BMB next month. I’m hoping for a remission of MDS, either way I plan on BMT soon after the BMB. I can’t imagine 3 years of vidaza cycles. The doctor said I was not close enough to AML to get the venetoclax in addition to the vidaza. I pray we both have blasts less than 5% in bone marrow. BMT is only way to cure the MDS blasts problem. I work for the lord so whatever happens to me concerning this disease and BMT is okay with me. As it is written to live is Christ and to die is gain.
I’ve been praying for you. I’m very happy to hear you have a girlfriend. I hope your blood counts increase and you get out of their. We both have biopsies soon to see if we are in remission. I’m praying for us both.
Wow, my learning curve began last year in November. I couldn’t even say myelodysplastic syndrome for a few days. My watch and wait was six weeks. I’ve had 3 cycles of vidaza, I needed a blood transfusion on the second and third cycle. At 4 cycles I get BMB. I hope I’m in remission. God is good. I know a lot about him, if you want to learn.
I’m very happy you get to speak to a doctor at Stanford. I am praying for you about your condition. This is a great website because it is monitored by caring people.
Yeah, for you. Hope is good. Love is eternal
If your doctor does not respond to your questions about why your husband is so tired, then I would get a second doctors opinion. I also have anemia. My hemoglobin and red blood counts are very low and it makes me very tired.
What is your husband’s hemoglobin number?
Was your husband diagnosed with anything else besides anemia 2 years ago and are his other blood values tested like WBC, Hgb?
I am so sorry to hear about your AML. When I said, ‘There is more to this life’, I meant what is inside you. You know eternity exists but you cannot not explain it with anything from this world. Concerning the two options available for defining why we are here, chance creation of the universe or divine creation by design, the choice is available to everyone to decide. I’m 68 years old and have a high risk of AML. I searched for this designer and was found, now I have a hope of eternal life with this creator. Perhaps, speaking with a hospital chaplain would help you. Your hair grows back after chemo. I will keep you my prayers.
Mark, the odds are a lot better than 50:50 for cure with a bone marrow transplant. You are petty close to having it about right, but you had to have noticed your age and how your flesh was different than when you were 20 years old. There is another part to this life besides running, jumping, and physical exertion. Your interaction with the people around you. The only difference between yesterday and today is the knowledge of your disease. You can redirect your motivation to those around you to give meaning and purpose to your life. All of our lives here on this earth are like vapor from a boiling pot, you see the vapor, then it’s gone. Whether you choose to treat or enjoy your remaining days is your decision. There is something greater than this physical life to pursue. COVID-19 does make life different.
I am sorry to hear about your wife’s condition. I am glad your medical staff are able to adjust the new COVID-19 rules so your wife and you can see each other during your Vidaza treatments. We have to make adjustments almost daily because of this terrible disease. This life passes very quickly and we need to enjoy each moment of every day. Strengthen yourself spiritually whenever you can.
MDS changes everything. One’s life is in the blood. I am sorry to hear your partner has been diagnosed. I hope they learn to adjust their life with the diagnosis. It is also difficult to be the observer of someone with the diagnosis. My prayers go out to you and your partner.