[karenkay]

I too check this forum almost everyday, although I don’t post often since my dad died.
I remember when Kelly passed away and I am so sorry for your loss. Sometimes, a year can feel like yesterday and sometimes it can seem a million years because of how much we miss our loved one.
I hope you are filled with fond memories and I hope she visits you in your dreams. When she does, give her a hug for all of us!!
God bless you,
Karenk

[karenkay]

Patti,
My heart goes out to you. I DO understand what you are going through. I only took care of my dad for 4 months before he died and in that time I lost 20 pounds (I was already pretty thin), spent 60-80 hours a week away from my family, and cried like a baby before falling asleep many nights. I was just worn out. My father didn’t mean to be so time consuming, he just was and everytime I promised myself that I was going to take the day off, he would call and ask me where I was. He seemed to forget I had a life with a marriage and two children who needed me, too. I am not saying my dad was selfish, he was just sick and scared and lonely and he needed me. But sometimes, I needed a break and I was blessed that my husband would help when he could.
Patti, there were nights I would bawl, not just cry and I would scream out, “why doesn’t the dear Lord give this man some rest from his suffering, and take him home to heaven?” and I know part of it was that I felt bad for my dad and part of it was that I felt bad for me!! I was crazy tired and missed my family.
Then my dear husband, who let me vent and held me close would say, “get some sleep, honey, that old sun will come up again tomorrow and God will give you the strength you need.”
Let your MIL get miffed once in a while and take care of yourself. Can someone else give you a break, even one day a week??
I was venting to a friend of mine once and I was saying how I had to go to all of these doctor appointments and this and that and she asked me, “Karen, why are you so afraid?” I share that because it led me to examine my motives for exhausting myself into a tizzy. Sometimes the motives were good, sometimes, they were out of pure guilt, and sometimes, they were out of fear of: 1) loosing control 2)loosing my dad and feeling like it was my fault or 3) letting down not only my dad, but the people who always said what a wonderful, caring daughter I was (that’s a lot of pressure sometimes!)
God bless you, Patti, you are not alone. Please remember, you are a wonderful, caring, selfless human being, but you are nevertheless, a HUMAN BEING, give yourself a break!
God love you and keep you,
Karenk

[karenkay]

My heart goes out to you!!
I so empathize with your feelings. It is hard to watch this disease.
You are in my prayers.
Karenk

[karenkay]

I am so sorry for your loss. I am very sad for you and your loved ones. May you feel the comfort and love of friends and family and the peace of God. Hans is free from this awful disease.
with sympathy,
karenk

[karenkay]

I am so sorry for the difficult times. I keep all of you in my prayers and my heart truly goes out to you.
I can’t tell you how many serious ups and downs this disease has. All I can say is keep faith and it “ain’t over til it’s over”. It can be despair one moment and joy the next. I pray for joy for all of you.
God bless you and keep you.
Karenk

[karenkay]

I hope your fil is doing better. I am sorry to hear he is in intensive care.
I am sorry I can’t help you with your questions. My dad never made it as far as chemo.
Positive thoughts and prayers are going your way.
God bless,
karenk

[karenkay]

I like it
Karenk
ps, I did NOT try to lick my elbow…promise.

[karenkay]

Can’t get to your page.
I am sorry that the trial didn’t work, but it is inspiring to hear your positive attitude. You are keeping what is important in perspective-LOVE. God bless you and yours always,
karenk
ps. I’m proud of you too

[karenkay]

so sorry for your loss. Please know you are all in my prayers. I hope you have comfort with those who love you.
God bless you all,
karenk

[karenkay]

I will keep you both in my prayers, but please please take care of yourself. You sound exhausted and take it from me, you will crash and burn!! I am sorry for your struggles and frustrations. Bob is blessed to have you.
God bless,
karenk

[karenkay]

Please accept my sympathies. May you find comfort in her freedom from suffering and in the beautiful memories you will treasure for a lifetime. There is strength in letting go, I hope you don’t bottle up your emotions for too long, although I do understand the need to hold it together for a while.
God bless you and comfort you,
karenk

[karenkay]

Caroline,
I do not even know what to say since I just went on this rollercoaster ride with my father and the decision was made to get off the roller coaster. Everyone is different and must make the best decision they can based on the wishes of the patient and the reality of the situation. My heart aches for what you are all going through.
I hope he is able to come home and get through this. I wish I had some wonderful insight into the whole antibiotic maintenance, but again, everyone’s body handles things differently. Kidney failure is pretty serious (I know, duh). Does your dad already get dialysis? I know you said he has kidney trouble already.
God bless you and keep you. I hope you can just love your dad and take care of yourself.
There is no better way to describe what is happening than to call it a rollercoaster ride, but with every peak and valley that you come to, please know that you have us to lean on and pray for you and support you anyway we can. I really mean that.
Please keep us posted if you can, but in the meantime, know that we care and are thinking of you.
God bless,
karenk

[karenkay]

my prayers are with you. I have understanding for your feelings as my dad just passed away on the 30th of Dec. from AML transformation. My heart goes out to all of you, I hope you find comfort in your love for each other.
God bless,
karenk

[karenkay]

So sorry to hear this news. I know that Caroline and all of you have been working so hard to help him be as healthy as possible. My heart truly goes out to all of you. Please give Caroline my love and I emailed her earlier. I will wait to hear from her, hoping for good news. In the meantime, I rejoice with all of you that he had a fine Christmas with his loved ones.
God bless,
karenk

[karenkay]

When we brought me dad from Illinois to Idaho, we had to travel through Cheyenne Wyoming and the altitude was higher. His oxegyn level dropped from 97% saturation to 89%. Once we hit the road and the altitude dropped, his oxygen was right back up to 97%.
Just my experience,
God Bless,
karenk

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