MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • December 5, 2018 at 12:42 pm in reply to: Vidaza quit working #44630
    Karen Warwick
    Participant

    At this time shes only started back in August 2018. No more than 3 or 4 cycles. Today she is having serious symptoms. Now back at the ER. Questionable heart attack.

    December 4, 2018 at 10:19 pm in reply to: Mixed bag of stuff. Need remedy or support #44625
    Karen Warwick
    Participant

    Thank you for responding. Everyday is different for my mom.

    November 29, 2018 at 12:57 pm in reply to: Vidaza quit working #44588
    Karen Warwick
    Participant

    Hi Cecile,
    My mom has MDS. Her levels are not improving since she started chemo. Shes 64 years old. She is always tired, shaky, brain fog, and unable to walk for any length of time. Blood transfusions haven’t boosted her hemoglobin either. Everyday is different but she doesn’t feel like shes living, and this is just the beginning. I wish I knew what to expect or how to help.

    November 29, 2018 at 12:50 pm in reply to: Second Opinions #44587
    Karen Warwick
    Participant

    I’m looking for anyone who had a parasitic lymes disease infection….prior to the onset of MDS…you may want to find out what else could be causing the symptoms. I think I read a second BMB would be done. Something in bone Morrow needs to be fluid. If its dry sample they may not get an accurate result.

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Viewing 4 posts - 1 through 4 (of 4 total)

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