[katiebear]

My dad is still in the hospital. He ran a fever two nights in a row. They don’t know why and it’s not a very high fever. they are doing all sorts of tests which will hopefully tell something. He says he will be there at least until Saturday. Thanks for the kind thoughts.

[katiebear]

My dad was discharged this afternoon. He got home and started running a fever. He is on his way back now. I hope it’s nothing serious.

[katiebear]

Thank you to everybody that has responded and have been so kind to me. I will mention the medications you listed, Nicole. My dad had a good day yesterday. He kept down his cheerios, had tea, and also Ensure. He did need neupogen as his counts still drop after a few days without it. Today is day +22. He felt good enough last night to lecture me on my finances, and that’s a good sign for him. He was very clearheaded. I will keep everybody posted. Thanks again.

Love,
Katie

[katiebear]

I know that he is taking Ativan for his nauseau. He actually kept down his cheerios yesterday morning and some Ensure. I don’t think he’s on an appetite stimulant, but I will ask when I go up on Saturday. He was a little bit better yesteday. His counts are staying up a little on their own, so that’s a good thing. He’s always had such a positive attitude, and it sucks to see him so down. He feels like he will never feel better again. I know he will, it’s just a matter of time. Thanks for your help.

Katie

[katiebear]

Hi Nicole,

It turns out his arm lumps are blood clots. My dad is having a really hard time the last few days. He has taken a turn for the worst, emotionally. He is still not eating that much. Everything he eats he brings back up. I think if he gets down half a can of Ensure he’s happy. He says the taste is beyond awful. He is nauseaus 24 hours a day. He’s hanging in there though. No fever or infection, which is positive. Thanks for asking.

Katie

[katiebear]

Linda,

My dad has RAEB2 and transformed to AML in March. I know his blasts increased pretty fast, and rising blasts are a sign of AML. I’m not sure what’s going on with your mom, I just thought I would let you know what happened to my dad.

Katie

[katiebear]

It’s me again. My dad is doing good. His counts are really coming up fast. His mouth is healing slowly. I have a question. I called him tonight after work, and it turns out he has lumps in his arms. I questioned him about them, and I could tell he didn’t want to talk about it. I just know they are in both arms. I don’t know if they are painful or not. I just wondered if anybody has any experience with this type of thing.

Thanks,
Katie

[katiebear]

Hi Diane,

My dad was diagnosed in March of 2006 with RAEB also. He is now at Sloan on day 10+, and doing pretty well. He is 65. His doctor did say he is a shot in the dark, but he was willing to try. I will keep your family in my prayers.

Katie

[katiebear]

I saw my dad yesterday. He’s doing well under the circumstances. His mouth sores are really bothering him. His ankles are a little sore from fluid retention. He started feeling joint pain on Friday. He had his pain medicine reduced again yesterday. Toady is only day 10+, but I hope something shows up soon. All this waiting is the hardest. He has yet to get any type of infection or spike a fever since the ATG treatment. We are thanking God and keeping our fingers crossed.

Take care,
Katie

[katiebear]

Hi Willie,

Thanks for the advice. My dad is not allowed to leave his room, so he’s not walking. I don’t see anybody on the transplant floor walking. Right now, he has VRE bacteria in his intestine. The nurse told me not to worry as he has no symptoms at this point. I hope she is right. He is also retaining quite a bit of fluid. The past two days he has been getting lasix and that seems to be helping. I hope his kidneys are okay. I will find out next time I go. Thanks for your kindness.

Katie

[katiebear]

Hi again. My dad’s transplant went well yesterday. I have to say that after all of this it seemed almost anticlimatic. He seems to be tolerating everything very well. I think we are all waiting for the other shoe to drop, and hopefully it won’t. We did find out that his donor is from Eurpope and is a male. My dad’s blood type will also change from A positive to O positive. I know that really doesn’t matter, but I found it kind of interesting. Thanks again for all the prayers.

Katie

[katiebear]

I stayed all day at the hospital and was ready to camp out all night if necessary for my dad’s ATG. He reacted pretty well considering. He did have rigors (shakes) pretty bad a couple of times. The nurses came in quick with demoral (sp) and they subsided. His blood pressure also went up a few times, but nothing dangerous. He had a low grade fever too. At it’s worst it only got up to 100.5. The team of doctors and nurses felt that yesterday would be worse than today, so that is good news. My sister will take today’s shift. Tomorrow is the actual transplant. Thank you everybody for all your prayers. They are greatly appreciated.

Love,
Katie

[katiebear]

I just wanted to update everybody that has been so kind to me. My dad is almost done with his chemo. He has today and tomorrow to go. On Tuesday and Wednesday he will be getting ATG. I went up yesterday and spoke with his nurse who said that those two days will definately be the worst. Then on Thursday he gets the stem cells. He is feeling pretty crappy, but still remains in pretty good spirits. He does have some type of bacteria in his intestines which is under control for now and hopefully will remain that way. His first mouth sore popped up yesterday also. I guess that’s it for now.

Katie

[katiebear]

Hi everybody,

I just wanted to let you know that my Dad is going in tomorrow to get his transplant underway. He was initially scheduled to go in on Monday but his doc called and moved it up to Sunday because of the holiday. He had an appointment on Weds. and he asked the doc about his chances, and she said anywhere from 0 to 50%. She has no idea about his chance at DFS, as according to her, he has many anomolies and there are no statistics. He did mention that she had to fight to get him to transplant as the board was not all for it for various reasons. I am grateful that he has this opportunity as many people his age don’t. Please pray for us. Thank you for all your support.

How is your wife doing, Jack, she remains in my prayers.

Katie

[katiebear]

Just wanted to update everyone that has been so kind to me. I took my dad in to Sloan yesterday, and we spent a whole scary day there. He woke up not able to move his arm at all, and with extreme naseua. He had an echo stress test on Tuesday to check his heart, so his doc was concerned about the naseua being a heart problem. We had to consult with an orthopedic who did an xray and concluded that it is only bursitis (sp?), which is good because it’s not a factor for his transplant. He had a sonogram of his gall bladder, he has some stones, but since his ducts are not blocked and his gall bladder is not swollen, that is also not a factor. He had an EKG which came back normal. They also did blood work looking for a heart problem and found none. The only problem seems to be that the area where he had his cathetor is blistery and angry red. It is oozing a tiny bit. He has sensitive skin and had a reaction to the adhesive tape. He is not allowed to have anything at all on it and he got a steroid cream to help. His transplant is pushed back to July 1st so it can heal. She is still going with the MUD, but if that falls through, she will use my aunt, but my dad won’t get a T cell depleted transplant, it would be a conventional transplant. My dad does not want to wait the 10 days as he is scared of coming out of remission. I guess that’s a normal reaction, I feel the same way. The doc did say that his was a very hard remission, and she does not want this to linger into July. She wants it done as fast as possible.

Thanks again for all your prayers and support.

Katie

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