MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: Vidaza – wants to quit – other options? #6012

    Kel
    Member

    Thanks – I haven’t been as thorough as I’d like in documenting things (I have two girls under age 5 at home, so I’m brain-dead!) Dad is 76, has had a kidney removed (’95), recurrent bladder cancer, is a smoker, etc etc. I know the MDS causes marked weakness but the extreme fatigue and nausea are just too much for him. Will ask about lowering the dose or lengthening time btween..and about Compazine. Will keep you posted thanks a milion

    in reply to: cmml and vidaza #4213

    Kel
    Member

    Vidaza seems to be working for my dad – (Diag 11/03) he is MDS with RARS, his HGB has been as low as 7.2 and he has needed transfusions. He has been on weekly procrit for over 10 months and will start round two of Vidaza next week. He didn’t need his procrit this week as his HGB was 12! We get very excited about double digits these days. He showed no blast increase last month. He does suffer extreme nausea from the Vidaza after about day 4, but takes several meds to help with that. I pray it keeps working and treatments work for you all as well.
    kelly

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