[Carrie]

I talked to my mom yesterday. Dad had a rough patch yesterday. His hemoglobin was low so he needed a transfusion and then he got a mild fever shortly after. The doctor let him go “home” to my sister’s house which is much closer to the hospital because she didn’t want to admit him yet. They stayed there last night. She said that sometimes temperatures raise a little after a transfusion.

Mom said she’d call me if they had to take him back for a fever. She didn’t call so I hope all is well! I usually know when something’s wrong, though. I have a close bond with my dad and, for some reason, I know when to call or I sense that something’s not right even though I live about 10 hours away.

[Carrie]

Bill and Mary,

My father had an auto-SCT for NHL before he got MDS. He was in pretty good health going into it and it went really well! He got some mouth sores and he was tired but he was back to normal relatively quickly.

I don’t have experience with an allo-SCT but my dad is a possible candidate for an all-BMT.

Good luck with your decision.
Carrie

[Carrie]

Maybe we should make a habit out of letting the new people know about the signatures both to let them know they can read them and to have them make their own?

[Carrie]

Thanks, Terri! I won’t look at all. The sticking and the blood filling the bag is the worst part.

I’ll let you all know how it goes. I’m going for a steak meal tonight. I hope it’s what I need .

[Carrie]

SubQ sounds more like what my mom meant. I think I filled in the blanks with what I thought I heard. So I guess they have to make sure they don’t put it into his muscle again but definitely not into his vein.

That explains why they don’t use his port for the injection.

[Carrie]

I hope this isn’t obnoxious but here are some smiles for you:

[Carrie]

Oh no, I can’t take credit! I saw it on another board (Lymphoma Research Foundation): http://forums.webmagic.com/ubbthreads/postlist.php?Cat=&Board=UBB2

It helps me because if I read that someone has the same diagnosis, I can direct questions to them .

[Carrie]

Brian,

I can’t really help you because I’m also new and my dad’s situation is different but you’ll find a lot of great advice on this board.

Good luck to you and your dad!
Carrie

[Carrie]

Thanks, guys (no offense to the women, I’m from New York, ya know)!

I’ll breathe deep and find a quiet place in my head. I’ll think of it as a nice little nap during work . Maybe I should bring a rug. I know I’ll get cookies after!

[Carrie]

eve,

Okay, now I’m confused and my mom must be, too. I’ll call her today for clarification…

Thanks for the info!

Carrie

[Carrie]

Alexa,

I was in your place just recently after finding out about my father’s MDS. Day by day, things got easier to deal with and it will for you.

Your feelings are normal so please don’t be afraid to share them.

:hug:
Carrie

[Carrie]

Yes, congratulations JimBob!!!

[Carrie]

I know my dad’s taking supplements but I’m not sure where from or what kind. I think he’s eating better, too. He’s never been very good at taking care of himself so he has to learn to. He’s up to over 300 lbs and he’s struggled with weight for a long time .

He’s taking the Vidaza well except for a small reaction at the site. They’re keeping an eye on it but they think that they injected it in the muscle instead of the vein. They may change where they inject it. The last time I talked to my mother was Tuesday and I figure no new is good news so far.

How long does it take after the last dose for the counts to intially go down? I know that’s where he has to be very vigilant.

Thanks!
Carrie

[Carrie]

Oops, I just realized that I wrote the wrong date for my dad’s Vidaza in my signature . It’s hard to remember that it’s 2005 now. Anyone else have a hard time going from year to year? Luckily I haven’t made a mistake in my checkbook yet (I think) .

[Carrie]

Just a suggestion,

Maybe people don’t understand the subject of this post. If your subject included the word “request” maybe everyone would read it? I’m trying to think of a good subject line but I’m at a loss right now.

Something like “Profile request” but that may not get attention either.

[Author]

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