[campbell]

Sandy………… so sorry about your dad. This disease is very difficult to fight…….sounds like he gave4 it a good fight. Try and remember the good.

[campbell]

Hello to all, and I also lost my husband 3+ mos on Apr. 16, 2007……….. I come back and read some of the posts ……….. I too wish all of you the very best and pray for a cure for this disease. I am also getting past the hospice and treatments but I just plain miss him so much. I have two grown children and they are also going through difficult times. My faith has kept me strong. Gods blessings to you all.

[campbell]

Alex. I am so sorry…… I lost my husband to this disease on April 16, 07 and my feeling are still fresh. I lost my father at 15 and I still remember the terrible hurt. All I can say it will get better with time but you will always have those special memories. Each death is different, spouse, child, etc. My faith has got me this far and I pray that you will have some peace soon.

[campbell]

Hello Everyone…… I am back to reading the board but it is so hard. Life is going on and as you probably know there are so many things to take care of, but I will get there. I went back to work but certainly not too hard… Would you believe I need Gallbladder surgery. This will be my 4th surgery in 3 yrs………..I am still hearing the music….. the Holy Spirit is really working with me. Thanks to all who listen and to all of you still on this MDS journey take care of yourself and I pray a cure will be coming soon.

[campbell]

Hello and Thanks to all who replied to my post. This board has been such a support to me and a way to educate myself about MDS. We had the Memorial Service on Thur/ 19 Apr. and it was such a great celebration of his life and also a time to prepare us for the spiritual meaning of death….. today is my first day alone and YES I do need that. I am still tired and know that I will have many bad moments, days etc. but I know my faith will get me through. I will continue to read this board and give any help that I can. God Bless YOU ALL.

[campbell]

Thanks to all who have replied to my post. Believe me those words helps so much.

Two hours after my post on this board, my husband passed on April 16 at 1:30 am.

Someone said we were connected and she is right. Three years ago today, Aoril 16th, I recieved a Kidney Transplant……….The date
of his passing was the date of my rebirth…
I have always wondered why God has given me a second chance in life and I know that it was in part to take care of him.

This has been difficult, but my faith in God has carried me and I can be sure that he will carry me on no matter what.

I must share this……….. at the beginning of his final days I could hear music in my ears, How Great Thou Are, Silent Night and many more. I believe it is the Holy Spirit. Thanks again and I will return later.

[campbell]

Patti, I am so sorry that you are going through this now………..I too have always appreciated your posts and agree that you and your MIL have fought the tough fight.

My husband is now under the care of hospice as of three days ago and I am so sad…. I will write more on another thread but now I am finding it hard to write…. please pray for him and our family.

[campbell]

I am so sorry to hear about your dad. The loss is so great . you think you are prepared but really we are never prepared. This may not be the best place to post this but my husband is in the hospital with a very serious infection in his toes and foot. We have been told that he will lose the toe and probably his foot and who knows what else. Dr.said he has had a change in his blood but not sure what he means… hope to have another talk tomorrow. He has had 2 unit red and 2 more ordered…. he has PAD disease.. this is such a merry go round………I am so worried……… I am so afraid of this infection… he is in so so much pain……please pray for him.

[campbell]

Hello Russ and all, my husband was admitted to the hospital today… he has been having a terrible time with his toes… one Dr. thought it was Gout Arthritis and another podiatrist said it was possibly a blockage of his veins… to make a long story short his primary care Dr. has been giving him pain meds and he has only got
worse. After x-ray and doppler test on leg they have determined that he has an infection in his bone. CT tomorrow to see how far it has gone up his leg.

After all this rambling I want to ask Russ what his numbers looks like with the transition to AML. My husbands WBC has increased from 2.2 to 5.9 in leas than 2 weeks. Am I asking for trouble and reading too much into the increase. Keep us in your prayers.
Campbell

[campbell]

My husband also worked around paint in his early years.. lead paint in barges…….. and later worked around jets for 20 years. What are the thoughts about this disease being inherited. His mom lived to 93 and in laters years occasionally recieved TX and also his aunt is doing same now.

[campbell]

Neil……….. Your reply was great. I am going to print and give to my husband. Thanks, Campbell

[campbell]

Hello Neil, so glad to hear from you…I am new to the bd and have enjoyed your posts…. sorry you are under the weather….. take care of yourself…. we miss you. Campbell

[campbell]

Thanks for this humor…………. a good laugh is always good……I personally have had a kidney transplant, dialysis for 1 1/5 yrs prior to transplant,abdonial hernia surgery and a bilaterial kidney nephrectomy of my native kidneys all over the past 2.5 yrs and add to this my husband has been diagnosed with MDS. I am such a firm believer in finding humor in all the bad…….. it has got me through so much… don’t get me wrong there are tears but God has always managed to let me find the humor in all of the trials. This is great and THANK YOU….

[campbell]

Thanks to all who have posted here on what to expect. I have posted several times hoping to get some input like this. I know we all need to be upbeat and try to positive, but as a caregiver of a patient who is not willing to do anything but tx’s I am in constant concern over what to expect. Your posts have given me some needed info. I am the educated one on MDS and he does not want to know too much about this terrible disease.

[campbell]

I would also like to add a special Merry Christmas to everyone on this board and especially to those who have lost their loved one this past year. This Christmans has been difficult because I fear what this coming year will bring. I know God gives us only the day or moment so I try and keep that thought in my mind. This is tough waiting with this hopeless feeling that this disease give me.

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