MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: Revlimid #58852
    Lucena Nicolas
    Participant

    I was taking redvimid from March to September 2022. My red blood count was stable at 10.5. No major side affects, so I thought. In September I was told to stop taking it because my liver was being damaged. I cried a river because I know that I will need blood transfusion again and again. On Monday November 28 I will have a second biopsy to determine if am a candidate for a bmt

    in reply to: Revlimid and mouth sores #58851
    Lucena Nicolas
    Participant

    I actually have taken revlimed from March 2022 until Sept. 2022. I experienced having mouth sores then and now. Redlimed help my red blood count. It was steady at 10 up from a 6. I find that as long as my blood count was up then my energy was also up. But I had to stop taking Revlimed because my liver was being negatively affected

    in reply to: Swelling of ankles and feet #58850
    Lucena Nicolas
    Participant

    I too have had swelling joints like hip,knees, fingers, and shoulders. Along with legs, ankles, legs, and arms. Sometimes it last for a day or two. Other times a few weeks. Pain level is between 4 to 10

    in reply to: Anniversary of diagnosis #58848
    Lucena Nicolas
    Participant

    Congratulations and it gives me hope. I too have taken the med you mentioned also know as Revlimed. I was diagnosed Feb 7,2022 started taking Revlimed in March and was doing so well until August. My doctor said that my liver was being severely negatively affected and I must stop taking this medicine. Now I am having to have blood transfusion 2 times a month. Hospitalize 2x for infection. I am having a second biopsy this Monday to see if I need a BMT

Viewing 4 posts - 1 through 4 (of 4 total)

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