MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Sounding Off #46310
    Melinda Johnson
    Participant

    Donna, You have every right to be frustrated and angry. It is absolutely unforgivable and ridiculous that medical professionals do not coordinate properly. Since you are managing a few health issues and advocating for yourself so effectively, I hope that if it is at all possible, you go to Mayo Clinic. There are 3 Mayo Clinic centers in the US. The emphasis is on collaboration. The experience of being there, having tests scheduled back to back and results available within a day so that your health team can meet with you an COORDINATE your care is unlike any other institution.

    Keep up the fight!

    in reply to: rest pain #44105
    Melinda Johnson
    Participant

    Hi Nancee,

    Is your pain perhaps due to low potassium? Are you getting leg cramps?

    Hope you find out soon!
    Melinda

Viewing 2 posts - 1 through 2 (of 2 total)

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