MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • in reply to: mds 5q-: does revlimid stop working #48696
    memily63
    Participant

    I was on Revlimid for 18 months before it stopped working. My hemo doc took me off of it and my numbers stabilized, even increased, afterwards. 4years later we tried again but it didn’t work and we stopped after 6 months. I’m now on Vidaza injections. I didn’t have a whole lot of side effects on Revlimid except that it caused DVT in my left leg.
    Has it stopped working for you?

    in reply to: Is Vidaza worth it? #46787
    memily63
    Participant

    I am also only in my second round of Vidaza. I have had very minor side effects so far. A little nausea is really all and it is managed easily. I, too, won’t know the results of the treatment for a while but I’m hopeful. I’m 55 and have been dealing with MDS for just over 6 years. I wish you well with your treatment.

    in reply to: Vidaza protocol #46555
    memily63
    Participant

    I just finished my first round of Vidaza last week and it seems to be standard practice around here, Montreal/Valleyfield, Qc, for there to be a weekend break in the schedule. My next round should be starting on the first Monday of May.

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