MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: New MDS patient #46765
    Misty Templin

    Kathy, Thank you for your peaceful reply (I teared up) =- and the suggestion to check with palliative care sooner rather than later. There is a wonderful hospice site just 9 miles from my home, and I’d planned to wait for the angels to pick me up there. 🙂 Read your profile and messages; really admire what you’ve done to deal with the disease. I know I could not do what you’ve already done. So you’re a nurse! Good for you. I’m discouraged because my male hematologist for the 17+ years with Ess. Thrombo would tell me NOTHING other than that “all was good” by staying on the hydroxy urea. After he ordered a BMB but gave me no info, other than my marrow was developing scar tissue, I dropped him and picked a female hematologist that a friend w/cancer at church really likes. But it’s been 9 mo. and we have not been on the same page. I would show her charts and graphs I’d made to prove that my marrow was acting really wacky over past previous months, and she’d dismiss it, mostly saying my 2 strokes last summer were the cause of the bad blood numbers. I don’t feel she’s taking any time to really look at my MDS symptoms. (sniff) TY again for writing.

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