MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: I have no idea what to expect #53010
    mlou
    Participant

    update on dad. We’re at the end of our journey. Dad had a 3 week break from treatments in August & didn’t feel too bad. He was more like himself. He did 2 rounds of vidaza & venclexta. Ended up in the hospital last week with a strep infection in his blood & a sinus infection. Treatment is not working. He’s completely dependent on blood & platelet transfusions. His system is eating up the platelets faster than they can put them in. Drs all said it was time for hospice. Dad agreed he didn’t want to continue daily transfusions if they weren’t helping him feel a little better any more. He was moved from the hospital to hospice on Monday. He deteriorates a little more each day. I am very sad that we are losing him but I will be happy for him that this is over and he can be with mom once again.

    in reply to: I have no idea what to expect #52179
    mlou
    Participant

    Thank you Gerry.

    in reply to: I have no idea what to expect #51405
    mlou
    Participant

    Update on dad, yesterday we were told he has end stage liver disease. He has been passing alot of blood with his bowel movements. Gastro dr wants to try to do a scope to band varices to try to control the bleeding. His platelets were down to 2 and HGB 6. Wants to put him on a blood pressure med that will ease the pressure coming from the liver but his BP is low at 90/42. When it rains it pours.

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