MDS is a bone marrow failure disorder
MDS is a blood cancer
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Viewing 15 posts - 136 through 150 (of 156 total)
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  • in reply to: George is in the hospital again #2931
    mommachkate
    Member

    Hi All, Thank you for your caring respond , honestly gives me strenght. Hopefully coming home today. Yesterday the kidney doctor said that everything oke . I have to go back to the hospital, I can post more when he is home. Kate

    in reply to: George is in the hospital again #2930
    mommachkate
    Member

    Hi All, It is so heart warming to read all your respond. Honestly, it is giving me strength.Monday his wbc was 123.000, the plt 6 and hmg 6 . He was in real bad condition. His feets are swollen with water retention. He needed oxigen to help him breath. So the doctor put him on Hydrea, and lasik . He got 7 unit of blood and 2 unit of plt since he is in the hospital.The doctor had a heart and a kidney specialist called to him, I still didn’t hear any concret statement from them , concerning his condition. His wbc are down to 56.000, and the doctor want to see how is his hmg tomorrow. His arms and legs are full of bruises ,red spots. It is so difficult to see him like this and not to cry. I also worry about th

    in reply to: Grandparents #2963
    mommachkate
    Member

    Hi Terri, Bob, So happy to hear this wonderfull news. Congratulation to all of you. Enjoy every moment with your precious grandbaby. Kate

    in reply to: PLUMMETING BLOOD COUNTS #2978
    mommachkate
    Member

    Christina, I made a bubu, somehow I pushed the add reply, before I finished the post. His plt are going up. That would be a sign that the Vidaza working. But why is all the other numbers are so low? Maybe it is also the initial reaction for the last round of Vidaza? I read somewhere, that sometimes they have to lower the dose. As far as the doctors: George is in the hospital since Monday. He was wisited by his hemo every day , than Wednesday he called a heart and a kidney specialist for him. I can’t get a straight answer from any of them.George hopefully is coming home tomorrow.He got 7 unit of blood and two unit of plt this week.He is feeling a little better today,so I was able to leave earlier.I hope your father getting better soon, our best wishes for his recovery. Kate.

    in reply to: PLUMMETING BLOOD COUNTS #2976
    mommachkate
    Member

    Christina,So sorry to hear that your father is so sick , and in the hospital

    in reply to: I lost my smile today !!! #2829
    mommachkate
    Member

    Hi Alexa, I am so sorry you feel so sad, but I understand you fully. You are so young, there is so many different treatment, you could get better so soon. Try to think positiv. ( Easy to say, right?) I belive positiv thinking is winning half of the battle. Just went, and share your thoughts, we are here to listen. Kate

    in reply to: update on Dad #2643
    mommachkate
    Member

    Bec, So happy to hear the good news about you father. Enjoy every moment together.Our best wishes for the rest of his recovery. Kate

    in reply to: Can I share my dad's story with you? #2650
    mommachkate
    Member

    Dear Lisa,Your story about your Father bringing tears to my eyes, I do feel your pain, I lost my father 20 years ago. He was also a wonderfull person.You are truly blessed, with having a father like yours, and all that love he gave everybody. Be strong for your Mom and all those beautifull memories keep Him alive in your heart. My thoughts are with you. Kate

    in reply to: Somebody mentioned a nutritionist, his name was… #2520
    mommachkate
    Member

    Hi All, I can only say, that in my family several illnes was treated by alternative medicin professinals (not even doctor) with good result. Of cause, you have to be carefull, who is advising you.I do belive in vitamins and nutritions, and I also belive it is very hard to find a well researched and competent MD.But if you find one , you should discuss with him the nutritions, vitamins you are taking. Kate

    in reply to: 2004 from beginning to end #2525
    mommachkate
    Member

    Marie, You have a wonderfull family. My thoughts are with you.How is Chris doing ? Happy New Year.Kate

    in reply to: Dad is in the hospital #2562
    mommachkate
    Member

    Sad, I hope your Dad getting better, and maybe he let you go with him to the doctor.My husband is just like your Dad, doesn’t want me to go. I went once, I had a lot of question. The doctor answered everything I asked. Still my husband doesn’t want me to go anymore.Jody has some good idea there, I hope you will be able to find out what is going on. Best of luck for your Dad recovery. Kate

    in reply to: Mom could go either way… #2496
    mommachkate
    Member

    Hi Margaret, Just hoping so much, that this is the begining of your Mom getting better. Our best wishes for her fast recovery Kate and George

    in reply to: New red blood building drug? #2546
    mommachkate
    Member

    Hi Neil, I should have known.Those are, not related to the bone marrow.More imput? Thank you. Kate

    in reply to: New red blood building drug? #2545
    mommachkate
    Member

    Hi All, I don’t want to be a downer, but the information sheet for Aranesp say”For cancer patients with cemotherapy induced anemia.Aranesp is prescribed to treat chemotherapy induced anemia in patients with NONMYELOID malignancies.” It is also says that it is lasts three times longer in your body, than Procrit. I am only guessing, but if someone doesn’t have secondary MDS, that person probably shouldn’t get Procrit or Aranesp. Regardles, George doctor tried both with negative result.Kate
    Hi Neil, Could you explain what is Nonmyeloid malignancy?Thank you Kate

    in reply to: My dad passed away #2531
    mommachkate
    Member

    Lisa, So sorry to hear the sad news. Your Father does have any pain now, he is in peace.My thoughts are with you in this difficult time. Kate

Viewing 15 posts - 136 through 150 (of 156 total)

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