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mommachkate
MemberHi All, Thank to everybody for the caring, conforting words.So hard to get through every minute of the day. I never new this kind of pain .It is hard to think , or eat, or sleep.You all, who saddened enough, because of your or your loved one sickness, I apologize. I don,t want to sadden you more with my sorrow, but I need to tell about it. Thank you all for listening. Kate
MemberCarrie,
I think you are righ . One of my friend mentioned to me several times, why couldn.t they plan this wedding earlier? And I was thinking and telling her, that with this sickness you never know what happening the next day. In april last year,George couldn,t come to the engagment party, he was so sick.Than again he had a couple of better month, in July he had a very bad infection, and so on. Ups and downs all the time, you never know, what next.I may scare you with this post, and I am very sorry. I posted earlier, and also tried to give you the advise to have your wedding as early as possible. I see now that I was wrong.I hope your Dad is getting better. Best wishes KateMemberHi Carrie,
Just like Suzanne, I never heard of this names either? I hope he is getting the right treatment and getting better soon. Please let us know. Best wishesKateMemberButch,
I hope your wife doing much better, and soon you will be able to plan that honeymoon.Please inform us, how is she doing? Best of luck with the rest of her treatment . KateMemberKathy, Such a great encouragment, real boost to my strenght. Thank you.When I am alone, I do fall apart. I hurry up and go on to read my friends post here and that helps me through those hard times.Best wishes for your Dad with the treatment. Kathy
Carrie , Just a thought. Would it be possible to plan your wedding really soon? We were trying to do that, but there was no possible way.Please try to enjoy the planning. Best wishes KateMemberCarrie, Our son is getting married May 28th . We are praying that George will be able to be there. In January he became wheelchair bound and in February he was in the Moffitt cancer center for chemotheraphy the whole month. We were hoping that he will go at least in partial remission, but it didn,t happened. He is getting tx every other week, from now on maybe every week. I can tell you that I am petrified , and very sad that we have to prepare for this wonderfull occasion, while George life is hanging on a thin thread. He is asking me day by day, if I think that he will be able to make it. Lets pray together , that your Dad and my husband also will be able to be there on their children wedding. When is your wedding being planned? I wish you and your family all the best. Kate ( Sorry about the lots of mistake, my English is poor, and nobody home to ask for help.)
MemberHi Terri, So good to hear the wonderfull news. I am very happy for you and Bob. Keep up the good job and enjoy the resting time. Isn’t the weather nice here? I wish you and Bob all the best . Please let us hear more of this kind of good news. Kate
MemberHi Karen, I know how difficult to take care an ill person, who can barely walks.I just found out , after we came back from Tampa, that he can have a nurse to come every oyher day to check on George and also a nurseaid, who will help him with the showering. He could have physical therapy come to the house also, but the doctor said not to, because of his spinal injury.Medicare ciovers all this, But nobady staying long , only 20-25 minutes, so I always have to ask somebody to stay with George if I have to leave the house. I hope your father will be able to have this services. How is he doing?I hope you and Kathy will be strong to help him with his treatments. Best wishes Kate
MemberHi Jody, I am so very happy to hear the good news about your Mom improvments.What is she taking the Cyclosporin for ?I hope we will hear more of this kind of good news.Best wishes Kate
MemberNeil, Thank you for the information, I will talk to his doctor about it. He indicated several time , that he does not recomend anything else , but supportive care. He said, George shouldn’t even get plt tx, because, his body might reject it when he might need it in case of an emergency. (Internal bleeding, etc). So, I am really so scared, and trying to find out abut something, what he could try for the plt.Best wishes Kate
MemberHi Esme,
I hope Hans is doing good and the treatment will work. Thinking of you two. Best wishes. KateMemberHi Barbara, Good to have you back, and thank you again you thinking of us.I hope every passing day will bring you a little more comfort for your pain.Best wishes Kate
MemberHi Alexa,Thank you for your support,my heart is so heavy. It is helping to hear from my friends of this forum.How you doing, where have you been?George is comfortable now, his appetite is not that great. Just the danger of the low plt, which is hanging over our head.I hope we hear from you more often, best wishes.Kate
MemberNeil,
So much we learn from you. I asked the nurse about checking the plt numbers the way you mentioned it. The answer was we did it twice. The plt still 1000. But next time I will ask the doctor for that test. Any certain name of that test? George has a lots of dark red almost black spots on his arm and leg. He has a lots of brusies too. Last week he had nosebleed for 3 days, than it stoped. Also for a few days he has these bloody bubbles on his tounge and inside his mouth. I wish I could find out , if there is anything he could try for that low plt.KateMemberHi Carrie, When George was on Vidaza, he was getting the treatment even when his count was very low.They only stoped the treatment when he got an infection, and from than on he became very sick, and transformed to AML.My best wishes for your Father treatment. Kate
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