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How you keep antibodies low with having that many transfusions?
I was diagnosed with MDS with hemoglobin only involved a year ago. Have been on Vidaza for 6 months and have not received a transfusion since February. Was at a MDS forum in Seattle last week where I first heard about luspartercept. Was told FDA will be considering approving it in December but I didn’t think to ask if okayed, when it would be released. Sounds very promising so hopefully it will be released soon. Was wondering when getting transfusions if anyone had trouble with iron overloads and also antibodies.
Thank u. Having another round of Vidaza next week n will discuss with Doctor. Appreciate input. Also attending MDS Forum in Seattle on September 10 so hopefully will meet people with MDS. Live in a small community so haven’t met anyone with this. Luckily I found this site so I have some others to ask questions n learn how others r coping.
Thanks for input. Thought that was what it meant. Am taking Vidaza n started having swooshing again in ears n was hoping that wasn’t what it probably meant. Sounds like it’s stopped working but will see at next labs.
I believe I will get 1 shot daily of Vidaza for 5 days once a month. I am still receiving Aranesp once a week but so far seems to have stopped working. Thanks for tips to help with the Vidaza.