[Marc Slovak]

After being monitored for about 8 years my platelets reached a level (in the 30’s) where my doctor thought I would benefit from INQOVI. I started taking the drug in February of 2022 so it has been a little over 2 years now. The drug has worked very well for me and while my platelets still seem to fluctuate quite a bit I have pretty much landed over 50K. My last reading was 60K (I get checked every month). Over the two years, I have connected with many people art Taiho and I have spoken at a couple of sessions where their employees were able to get a patient perspective on taking what they have developed. The people at Taiho are wonderful. In my MDS journey, I have been fortunate that my only issue is with platelets (red & white cells are ok) and INQOVI is much better than having to undergo transfusions. The bottom line is that the drug has worked well for me and I will continue to take it.

[Marc Slovak]

Closer to 9K a month. My part D with WellCare covers all but $10,000 per year. There are a number of orgs that make grants to assist with the copay. My specialty pharmacy helped me with this. Most offer such a service

• This reply was modified 1 year, 10 months ago by Marc Slovak.

[Marc Slovak]

Of course everyone is different but I have had no side effects at all and the drug has been working for me. Good luck with your treatment!

[Marc Slovak]

Kate,
Thanks for the reply. It sounds like the drug is working for you as it is for me. I’m hoping to get my platelets above 100. Moving from 4 to 5 weeks was something I hadn’t heard of. Perhaps when my platelets get higher I might discuss this with my doctor. Like you, my motivation to take INQOVI was to avoid the IV chemo which would have significantly change my lifestyle. I wish you all the best in your journey. Marc

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