[Lisa Dana]

I believe the lenalidomide is the generic for Revlimid, that was approved in March 2022. You can get grants from the company or several other pharmacies. I’ve been approved for many grants regarding Revlimid. Most last about a year and I have no copays at all. I’m also on Medicare. I think if you reach out to Celgene they may be able to help with the copays. One place to check out is Patient Advocate Foundation they can put you in touch with copay information. I’ve been on Revlimid for about 5 years, seems to be ok although I still have blood transfusions every 3 weeks with my hemoglobin staying below 7.

Every month my medicine is delivered by Fedex overnight. It comes heavily packaged with and ice pack, several wraps of caution tapes and bags. Then I get 3 phone calls from the company, the pharmacy and someone else to answer questions about how to handle the medication. You don’t need to wear gloves but no one else should be handling it.

Just as a side note. One of the lenalidomide capsules got stuck in my throat last month. The pill broke in half, one half stuck in my throat and the other have was ‘coughed’ out on the floor. My husband called the emts and poison control. I was taken to the hospital and had a throat wash. Hazmat was called to remove the half capsule from my carpet. They wore zoot suits and gloves and thoroughly cleaned my carpet.

[Lisa Dana]

Mine was paid for by grants. You can also look up Patient Advocate Foundation they can offer some assistance in grants or co-pays also.

[Lisa Dana]

I’m glad your BMB went well. Mine did not. On my first appointment I was worried and was not given any anti-anxiety meds, my Dr. was 1 1/2 hours late as I tried to wait patiently on the table. Couldn’t stand it so I re-scheduled my appointment as I was having a panic attack after seeing the tools in plain sight I was terrified. I went in the next week with no anti-anxiety meds. It Hurt like crazy! The next BMB I have I will be sedated. My Dr. took four samples, 3 of blood from the bone and 1 of bone marrow. After the first 3, the nurse said “you may feel a bit more of a pinch”. Pinch would not be the word I would use at all. I ended up on the table with the weighted sand bag for 2 hours after because they could not control the blood. It was awful. I don’t mean to scare anyone, and I understand everyone is different but that was my experience.

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