MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: Vidaza injection site discomfort, HELP🙀 #49414
    Jim Shofner
    Participant

    In regards to site discomfort, my wife has had 28 treatments of Vidaza which began in August, 2017, 8 transfusions, and now has weekly blood tests. Next week she will have a port implanted which will resolve the problem of site discomfort, and finding a vein for transfusions and blood tests. If that is too drastic for you, I will say that up until now she has also used Aspercreme with lidodcaine as well as hydrocortisone cream when ever she needs comfort.

    • This reply was modified 4 years, 5 months ago by Jim Shofner.
    in reply to: How long can we be on Vidaza. #46618
    Jim Shofner
    Participant

    To Debra,
    My wife is 83 and has just finished her 22nd treatment of Vidaza after the diagnosis about 3 years ago. She started at 5 days and a four week cycle, but now is on five week cycle. She has injection site discomfort during the week of treatment, but it slacks off and has 3 or now 4 good weeks. Nausea very minimal if any, but she does get an infusion of anti-nausea and steroid first day of treatments which do help. Her low platelets are primary concern and hemoglobin is low which causes tiredness. She had a transfusion last month and the doctor said that will probably happen again. In her case, I do not see the treatments as ‘physically brutal.’ I am confident it has prevented her from progressing to AML. She is in good health otherwise. The treatments do take some time, but she is thankful for them. The results of BMB and the advice of the doctor would guide me. Prayers.
    Jim

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