[patti]

Frank,

Glad to hear your hanging in there. I can’t help much with the vidaza issues but sounds like terri has you covered with that. Keeping you in my thoughts.

patti

[patti]

Thanks. We saw mom’s doctor today and she was no help at all. She checked mom for appendicitis and a bladder infection. Both negative. Then she just shook her head and said she didn’t know. I asked the doc if it was possible she could have some slow internal bleeding (her last platelet count was 19K) and the doctor blew that off and said internal bleeding doesn’t hurt. I talked to a neighbor that’s a retired nurse and she said that’s a bold face lie. Internal bleeding does hurt and it doesn’t always show up right away in the bowel.

Joan, I just read how your father died. That is so hard. I have been praying that my MIL would not go home to the Lord without someone being there. I have a retarded SIL that will come to my care and I can’t stand the thought of her being all alone when mom goes. Bleeding has been top on my mind for that.

Thanks for the input ladies.

[patti]

Marla and all,

Thank you for your help! Lots of helpful information. Marla, I did read your story on geocities and told my MIL about it. What a great testimony to the body healing itself! I understand what your saying about the vit. C but all of the information I read on desferal says that if you’re doing desferal treatments not to take anymore then 500mg. of vit. C because it can cause death. Is that false? Since posting my first message we’ve talked to the doctor and they wouldn’t start treatments until she were at 2000. Part of our thing for not doing the desferal is that even if everything goes really well it seems like we won’t have mom for more then another year, if we’re lucky (except I don’t believe in luck – so I’ll say blessed instead). Is that defeatest? We have a good attitude about healing, we’re also just trying to be realist. Maybe those two can’t go hand in hand.

Thank you so much again for all of the info. I so much appreciate it. Her ferritin will get checked once a month when she sees the doctor. At her next check if it goes up I will pull her off of the immunical.

[patti]

Hi Suzanne,

It looks like you’re doing great! That must be a tremendous blessing! I actually avoid asking mom’s doctors anything that has to do with the natural because their response is always the same. If there wasn’t an FDA trial for something natural then it’s not worth taking. I’m really serious. They actually told us a few visits ago that we had no idea how well mom was doing in light of the disease she had and we told them we knew she was doing well and we attributed it to God’s mercy and lots of supplements. They were sure that neither of those things really mattered. Anyway, that’s why I thought I’d ask here. If no one was sure about the supplements I thought maybe someone would know about the 2000 number being “critical” vs. it taking 10yrs for organ failure for iron overload. Thanks for the input.

Patti

Patti

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