I noticed someone asked which MDS I have, my doctors have said that it is the eighth type, MDS associated with isolated del(5q).
Neil, my Essential Thrombocythemia causes my platelets to be the exact opposite of yours – I have way too many. At the highest count, my platelets where 2.6 million! For about three months now I have been taking Anagrelide to help reduce my platelets. I have a CBC weekly and my last count was around 700,000.
For the MDS, I am scheduled to have a bone marrow biopsy every three to four months and I have the weekly CBC. In fact, I just had my second biopsy last Thursday.
I have a doctor in my hometown who specializes in the ET and I have doctors at WVU who specialize in the ET and the MDS.
