MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • in reply to: Dacogen How long will it work ? #45149
    Richard Rockwell
    Participant

    It worked exactly 2 years for me. Now I’m taking cytarabine a stronger chemo used for AML,ALL,CML. I was and still only MDS Max blasts has been 12%.

    in reply to: MDS hereditary? #44999
    Richard Rockwell
    Participant

    My dad died from MDS and now i have it. We were told that it wasn’t hereditary in 2000. Good luck

    in reply to: Starting Dacogen #44718
    Richard Rockwell
    Participant

    I was on Dacogen for 2 years until it failed to work, with few or no side effects. I was on the same schedule of 5 days on and 3 weeks off. Hope it works for your husband.

    in reply to: MDS question #44522
    Richard Rockwell
    Participant

    My oncologist also says its cancer.

    in reply to: Mortality rate MDS RAEB II #44320
    Richard Rockwell
    Participant

    1 of my doctors says their survival rate for just the procedure is 45%. I believe that’s 3 years after. That was 2 years ago. I chose Chemo (Dacogen) over transplant it worked for about 2 years but now has failed.

    I have an appointment with another hospital next week about BMT this hospital is marked as MDS center of excellence. I will ask them what their survival rate is. I’m hoping its higher than 45%.

Viewing 5 posts - 1 through 5 (of 5 total)

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