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Roderick McCuneParticipant
Thanks so much Richard. I guess everything has it’s pluses and minuses. So decline in quality of life will happen either way. I appreciate your input. Best health to you.
Roderick McCuneParticipantGlad you are over Covid Ray. Hope you continue to improve. We got vaccinated in June, but even then we have to be careful. Were your symptoms bad? Rod
Roderick McCuneParticipantSorry about your cancelled procedure. Hope you are not positive for Covid. Hope you return to MDA soon for treatment. Prayes to you, Rod
Roderick McCuneParticipantHope your treatment goes well tomorrow, Raymond. My wife and I will say a prayer for this to help. Take care and God bless.Rod
Roderick McCuneParticipantThanks for the message Raymond. Glad this clinical trial is helping. It is a blessing to have such advanced care in this country. MDS is tough to live with but I know I can trust in my doctors to do everything for my best interest. I keep taking one day and be grateful for it. My wife and I cherish each minute we can. Regards, Roderick McCune
Roderick McCuneParticipantRaymond, glad to hear this is working for you. Previously, did your doctor do any Vidaza? I also am getting a no regarding stem cell transplant. My doctor says it is a numbers game as to whether it is advantageous. It is a lot to endure to have transplant. Your way seems better. My WBC and Platelets have been just out of range for a long time, but my Hgb dropped from 13.1 to 11.9 recently. I go from mildly panicked to acceptance each time. Not sure what the future holds, but I trust God watches over the situation. Lets keep this dialogue going if you like as it helps to monitor our progress. Sincerely, Roderick McCune
Roderick McCuneParticipantI agree with exercise. I run to keep active. My hub is 11.9 currently. I am hoping my next blood draw is better. Exercise is good no matter what
Roderick McCuneParticipantThanks for contacting me about your new diagnosis Raymond. I appreciate also conversing regards to going through this process. What is your clinical trial at MD Anderson about? Are you symptomatic? Is there any recommendation for stem cell transplant at this time? Hope my questions are not too intrusive. I have been asymptomatic so far, but oncologist is doing the watch and wait mode. Rod McCune
Roderick McCuneParticipantThanks Tam. I hope to stay active like you with running and cycling. My next blood draw is in August and I am hoping my hemoglobin holds at 11.9 or goes up as I am pushing harder on my workouts. Thanks for the encouragement.
Roderick McCuneParticipantThanks Kevin for your response. We’ll see what happens. Hope you do well with your activities and stay healthy
Roderick McCuneParticipantThanks again Tam. Very helpful. rod
Roderick McCuneParticipantThanks for your information
Roderick McCuneParticipantThanks Nancy for sharing your story. I pray your numbers stabilize and you continue a long life. I know my faith in Jesus keeps me focused on living each day knowing my life is in His hands.
Roderick McCuneParticipantThanks Bob for your story. I appreciate your sharing. It is good to know other stories are being written out there. Rod
Roderick McCuneParticipantThanks Tam
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