MDS is a bone marrow failure disorder
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • November 10, 2020 at 10:55 pm in reply to: asymptomatic mds #53276
    Roderick McCune
    Participant

    Tam
    Thanks for sharing your diagnosis and it’s details. this is very encouraging to me. I know my oncologist said this could go on for decades so you are an example. I run and bike daily, but not anything like you. Your routine is amazing. Do you think your strict diet helps to keep your bloodwork in low range steady? I have not changed my diet yet. Rod

    November 9, 2020 at 9:25 pm in reply to: asymptomatic mds #53272
    Roderick McCune
    Participant

    I have Cleveland clinic nearby. would that qualify?

    November 8, 2020 at 6:33 pm in reply to: asymptomatic mds #53263
    Roderick McCune
    Participant

    I can’t thank you enough Michael for your upfront response and I am glad you are staying symptom free. I appreciate this information and will continue to learn. I need to have the bone marrow biopsy but my doctor thinks it is too early to do this so I will have to discuss it with him. I am 69 years old and just referred in August to oncologist. Thanks again Michael

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