Forum Replies Created
-
AuthorPosts
-
Rose eden Guanzon
ParticipantPraying for both of you…
ParticipantMy husband is the one with MDS. He wants me to respond to this. He has undergone 8 bmb since he was diagnosed last year. No sedation is done on him. The doctors does not just get fluid, +hey also get a bone chip when they do a bmb. He swears he does not feel pain and that the injection hurts more than the actual aspiration. So i guess every person is different. But if it is any consolation, i know he is telling the truth. I could not really see any pain on his face.i have been with him on every one of those bmb procedures.
February 28, 2019 at 3:46 am in reply to: Anyone out there who has been successfully cured by a bone marrow transplant? #45172ParticipantThank you John. If you are Caucasian you have a good chance of finding a match. I understand that a younger donor is better. However if your sibling is in good health that can work well too. You are in my prayers. We have decided to go ahead with the transplant. It might be this 3rd week of March. I will keep everyone updated.let us all pray for each other.
February 26, 2019 at 12:10 am in reply to: Anyone out there who has been successfully cured by a bone marrow transplant? #45157ParticipantBridgette from what I have read your type of mds has a very good prognosis. Stay hopeful. You will be alright.
ParticipantMy husband has RAEB II.before we started Dacogen, his platelets were at 12000. At one time it was at8000. His WBC was at. 5 – .8. But the.8 was already on the 4th decitabine cycle. It went as low as.3 at one time.he started responding on the 4th cycle.for the last 6months, he had not needed a blood transfusion anymore.
February 20, 2019 at 2:42 pm in reply to: Anyone out there who has been successfully cured by a bone marrow transplant? #45144ParticipantThank you to everyone who responded. Amy you have been so informative. It is now clear to me that i do not know enough. For example, i did not even know that i should be aware of the mutations. All i know is that my husband has RAEB II. I have also been such a coward and never even asked about the prognosis. I hope more people will continue answering in this forum so i will learn more. I will pray for all of you. I am very good with that.
-
AuthorPosts
