MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: On Dacogen and Needing Blood #45773

    Marion Vess
    Participant

    Hang in there…They say (I don’t know who they are) but it goes with the turf..getting worse before getting better…My spouse just had his first dacogen on Monday…He is exhausted, but not having blood tested until Wed..(I think) So confusing dealing with all these words..Good luck to all🙏🏻

    in reply to: On Dacogen and Needing Blood #45177

    Marion Vess
    Participant

    My 80 yr old spouse, just had 3 days of Of dacogen. .Mds 20 years. procrit many years.. in the past many transfusions and once a week injection of arinesp..when do side affect start after dacogen? Also has hemochromatosis..exjade given daily for overload of iron..double edge sword..when getting transfusions..iron in blood .

Viewing 2 posts - 1 through 2 (of 2 total)

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