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Sandy MMember
Caroline,
theres many prayers coming from your forum family, including mine….Sandy MMembermy thoughts are with you and your family
Sandy MMemberYes Teri,
Marie does pop in once in awhile, I hope she see’s your post, she believes the common factor in her loss’s were do to benzene exposure.
My fiance, Joe, was exposed to benzene among other things, he was not able to pin-point one certain cause, he was in viet-nam, and had also worked with many chemicles throughout his whole life ….. If you look back into the archived forum records and look for “waldens wife” you can see what her experiences were (in your spare time ofcourse haha )Sandy MMemberThis is soooooo familiar, and soooooo frustrating, isn’t it ? I couldn’t log on to this site for a few months or so after my fiance had passed away, nothing I did wrong and tried all sorts of ways to get back, the web master tried to help me, but they couldn’t get me back in either, then all of a sudden one day, when I was messin around I tried to log in again, and *** POOF *** here I’am… I could always read the forum, but not log-in …so glad I made it back though,
Sandy MMemberhello….and welcome, I bet you wanted to drop to your knees with news of this type, wondering…why ?
well, there’s a forum member on this forum, her name is Marie, I met her when I joined this forum …her husbands name was Walt and her signin name is…waldens wife, she not only lost her husband, but her son a short time later to the same illness, benezene exposure and being exposed to chemicles or pesticides , and even from agent orange…
there’s lots of friendly hugs being sent your way from cali.Sandy MMemberGreat New’s…. sounds as if you really needed to take a deep breath now and relax a lil (once someone has a dx. like ours, relaxing goes out the window forever) but to sit and rejoyce in the great results you’ve been given
Sandy MMemberWarren,
My name is Sandy and I want you to know that I echo the welcomes before me, There are all types of experienced people in this group of all ages and experiences, some sucsessful and some not , but all in all, theres a wealth of knowledge you can gain from us…
try to sit back and take a deep breath and read away, but don’t try to soak it in all at once, it can get very overwelming at times.
good luck and never stop asking questions, knowledge is powerSandy MMemberBest of thoughts are heading your way, last news I heard was it was suppose to hit southern Florida with almost 100 mph,winds but they are waiting and prepared (emergency crews) they also said it was suppose to hit Florida on Monday…
Is this correct or should I change my stations ?????Sandy MMemberJoe’s normal temp. ran around 97 degrees, when he did go up to 100.5 degrees I was told to rush him to the E.R as well, they had no clue and just stuck us in a room like we were nuts, ofcourse when these things happened he also was wearing a mask ,that I had requested from them (and the looks I got …geeeeesh… they would of left us in the waiting room around germs and I had to advocate for Joe because he had spiked up to 101.9 and come to find out he had “sepsis” and it nearly killed him because of the lack of knowledge (just our luck..haha )so after I ranted and raved they admitted him and he ended up staying in a private, special seclusion room, and spent the next two weeks fighting the sepsis, NEVER MESS AROUND WITH A FEVER ! even a slight one, it could turn out to be a matter of life and death
Sandy MMemberMy wishes are also for thoes of you affected by once again a bad hurricane season (my bro and sis @ family live in Biloxi Miss. ) so I know the nerves that come along with the news casts, bless you all
Sandy MMemberMarie,
I’ve been gone for a few day’s and i’m so heartbroken and I grieve for you … as if losing your partner in life isn’t a big burden to make peace with , now this, you now have to endure saying good-bye to your child, I can’t think of anything to say other than…bless you and your’sSandy MMemberStephen,
welcome to our family, although I’m sorry you have a need to search us out.
I also live in Ca. where in Ca. is Palm desert ? I’m in Northern, anyway there are two very good hospitals that I know of here, one is in L.A. it’s called the “city of hope” and one is in Palo Alto called “Stanford University”, If you haven’t done this already, I would have your Dr. recomend you to one of these for a second opinion by a Dr. who specializes in this type of illness, and as Patti say’s (and others will agree) that thoes lil black books the Dr. pulls out to tell you your median survival rate, is VERY stale, these type of bone marrow diseases are very individualized and scarey and confusing in the begginning , but as you’ll learn about YOUR illness you’ll feel more in control…your among friends here, we all share a common bond,Sandy MMemberDi/Scott…
not only are you in a circle of prayer, but you are going to be starting out on a new chapter of your lives…hang in there !!! and post to keep us updated when ever possibleSandy MMemberKate,
It is great to hear from you, Keeping busy is a good thing, it’s our minds way of copeing, just remember that when the tears want to come out, let them, it’s like riding a wave, just let go, mourn, and take a deep breath and a step forward… I know this is so hard ! and also for me it’s so hard to believe as well, My baby girl is a senior and wants to attend a vetrinarian college, here in Cali. the best for this is “Davis” but I’m lucky to have my lil Joe, or I would be facing a empty house as well, You’ve done a great job mommy, your child has grown up and wants to attend higher learning, this will be a happy and proud time for you at the end of the year, and although the kids do leave the house, {{{{{{ they still need us mommys }}}}}}Sandy MMemberJack,
Thank you so much for letting us know that Marsha was o.k. She was extremely supportive twords me through some rough spots several times and I think of her often,(as well as many of my forum friends) what a blessing !!!Jimbob,
keep your chin up and your head held high, You’ve been through hell and have survived to make it to the other side, the side of life,
as we all are aware of, everybody’s illness and possible
road to a cure is sooooo bumpy and no two are alike. I mean, when you stop and think just how amazing the human body is and what it can or can’t tolerate is awsome, you’ll also get stronger as time moves on, right now, it’s your chance to slow down and smell the roses and watch sunsetsEllie,
your right, us mom’s never stop worrying about our kids and we also treasure every moment we spend with them, I know that from my experience I will never ever take anyone or anything for granted ever, I guess I’ve opened my eye’s to whats really important in life , my Joe and our fight for his life taught me some valueable lessons,Marsha,
Marsha Marsha Marsha
thanks for posting, all I can add to this thread is ……….. YOU GO GIRL !!!!!!!! -
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