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sarah
MemberWonderful update.
MemberKaren, I pray the grace of God will sustain you during the days ahead.
February 3, 2007 at 1:34 pm in reply to: Consider cord blood transplants if no bone marrow donors available #17021MemberHi Simon,
i have thought of you often and wondered how you were doing. what a great update. you have been blessed. my husband is one who never had a bone marrow match. we went to university of minnesota in oct of 05 after learning he had a double cordblood. it was not a perfect match but we thought it was an answer to prayer. we checked into induction chemo here in a local hospital for what was to be 30 days of chemo. that 30 turned into 61, the day he passed. he never made it to minnisota. although my husband did not get the chance, i am so very happy that this is available to those who cannot find a suitable bone marrow match. i pray you continue to regain your health.
god bless you,
sarahMemberStephanie, sounds like you have been through alot. Just have to take things one day at a time. My husband passed on Jan 9, 2006. This past year has been the hardest of my life.
MemberStepanie, what classification of MDS do you have?
MemberRuss, beautifully said. I will never forget the days leading up to my husbands death and the moment he passed. He had the love of his family and the assurance of his salvation. He was at peace and God’s grace was sufficient. I watched as he entered the gates of heaven and was instantly in the presence of God. No more MDS. My heart aches daily for my loss. I do count my many blessings through the tears. God is good and loving and I know I will see him again when I am called home. I pray for strength for each of us as we face this disease. Soon I hope there will be a cure.
MemberEve, my thoughts and prayers are with you and your family at this time. I have followed your posts for many years now.
Your dad ‘s fight is over and he is at peace now.MemberHi Neil, hope you are feeling normal very soon. Miss seeing your posts.Take care.
MemberLuAnn,
Hope it helps your dad.MemberThe only thing Dr prescribed was neurotin for this. It took the edge off but never went away completely. Quality of life is most definitely affected. This disease is so very hard on everyone it touches.
MemberLuAnn, my husband had extreme episodes of itching, burning and shooting pains all over his body. Dr could never really determine what was causing it. He experienced this for almost 2 1/2 years.
MemberMy husband, Charlie’s spleen enlarged to the point the Dr removed it Sept of 2005. It was a tough surgery on him, he was transfusion dependent at that time and platelets down to 7000 day of surgery. It was a tough few weeks of recovery. Dr said spleen was the size of a football.
MemberTake care of yourself Sandy.
MemberSandy, my prayers are with you. I know your pain. God’s grace and mercy will sustain you. Keep in touch when you can.
MemberI too cannot even put into words the incredible loss and pain I feel. I am lost without Charlie. The pain is so very sharp. No one truly understands the pain of grieving for a spouse unless they have been there. Its been 11 months. My Dr thinks I am depressed. Wants me to take something. I told her there is not a pill in the world that can fix this broken heart. Only my faith and the grace of God has gotten me this far. He is the love of my life. I pray for strength for each of us.
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