MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Deletion 5Q MDS Treatment #58747
    Satoshi Kojima

    Hi Robert,

    I’m del5q, with ASXL1,PPM1D and TET2 mutations. I’m currently watch and wait and it has been 1 year since diagnosis. Hemoglobin down to 9.4. Doc says that when HB is down to 9 he will start me on Procrit injections to help with the red blood cells. Procrit is a man made protein to help produce more red blood cells. Doc also advised that if Procrit not working I would go on either lenalidomide or vidaza.

    Hope this helps and good luck with your treatment

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