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Praying for you and the family.
Loss of appetite, tiredness, more frequent transfusions, wanting to sleep a lot. My dear dad passed away in May and those were so.e of some of the symptoms he experienced the last two months.
I am so sorry to hear about your very young son with MDS and his experience. I truly wish you through best and keep supporting him. My 93 year old dad recently passed from MDS and we went through 4 rounds of Sepsis, but your son is so young.
From the 13 months that my dad was on Vidaza and blood transfusions, the effect of the long tterm transfusions was more detrimental in the long run than the Vidaza.
My 92 year old dad had 13 rounds of vidaza with no side effects.
I am so very sorry for your loss. My father passed away of MDS on May 24th. We have to try and be strong. You did the right thing.
I am reading about more and more Vets being diagnosed with MDS. I lost my hero 6 weeks ago, my dad a world war 11 Marine. He was exposed to the Nagasaki bomb. I wish you the best.
Sorry, my father had 13 round of Vidaza.
My father was a world war 11 marine who just passed away from MDS. I have been trying to research the overall number of vets with MDS.
I know someone who has been on Vidaza for 8 yyears. It is a friend, as my father was on for 113 months.
My father had a similar issue with his ankle. Please go to the doctor and get checked.
This is a wonderful list, which I wish we had when my dad was diagnosed.
Sherry, your post is right on target. My father was independent until last September, when my sister became the weekday caregiver and I on the weekends. In Feb, he had to get a HHA 4 days and in the last few weeks before he passed Way on May 2rth, 24/7 care. It is emotionally tough for us watching our loved one through the rough times. A notebook helps and trying to keep your loved one positive.
Hi Clint, my dad was a world war 2 marine who just passed away from MDS. We think he got it from being exposed to the Nagasaki bomb. You should seek out an MDS Center of Excellence and get a second opinion.research MDS and exposure from the military, there is a lot of info. Best of luck and feel free to write.
Was your father a veteran?