MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 15 posts - 1 through 15 (of 19 total)
  • Author
    Posts
  • in reply to: MDS and Hospice #45134

    Wendy Brizer-Maciol
    Participant

    Praying for you and the family.

    in reply to: Signs of end stage MDS #44666

    Wendy Brizer-Maciol
    Participant

    Loss of appetite, tiredness, more frequent transfusions, wanting to sleep a lot. My dear dad passed away in May and those were so.e of some of the symptoms he experienced the last two months.

    in reply to: My son with MDS #36962

    Wendy Brizer-Maciol
    Participant

    I am so sorry to hear about your very young son with MDS and his experience. I truly wish you through best and keep supporting him. My 93 year old dad recently passed from MDS and we went through 4 rounds of Sepsis, but your son is so young.

    in reply to: Procrit then Vidaza-nervous #36941

    Wendy Brizer-Maciol
    Participant

    From the 13 months that my dad was on Vidaza and blood transfusions, the effect of the long tterm transfusions was more detrimental in the long run than the Vidaza.

    in reply to: Spliceosomal mds #36929

    Wendy Brizer-Maciol
    Participant

    My 92 year old dad had 13 rounds of vidaza with no side effects.

    in reply to: Caregiver question – managing a job? #36844

    Wendy Brizer-Maciol
    Participant

    I am so very sorry for your loss. My father passed away of MDS on May 24th. We have to try and be strong. You did the right thing.

    in reply to: Vietnam Vet with MDS #36810

    Wendy Brizer-Maciol
    Participant

    I am reading about more and more Vets being diagnosed with MDS. I lost my hero 6 weeks ago, my dad a world war 11 Marine. He was exposed to the Nagasaki bomb. I wish you the best.

    in reply to: high risk MDS #36753

    Wendy Brizer-Maciol
    Participant

    Sorry, my father had 13 round of Vidaza.

    in reply to: Vietnam Veterans #36752

    Wendy Brizer-Maciol
    Participant

    My father was a world war 11 marine who just passed away from MDS. I have been trying to research the overall number of vets with MDS.

    in reply to: high risk MDS #36741

    Wendy Brizer-Maciol
    Participant

    I know someone who has been on Vidaza for 8 yyears. It is a friend, as my father was on for 113 months.

    in reply to: Pain & bruising #36735

    Wendy Brizer-Maciol
    Participant

    My father had a similar issue with his ankle. Please go to the doctor and get checked.

    in reply to: What should I ask the dr #36733

    Wendy Brizer-Maciol
    Participant

    This is a wonderful list, which I wish we had when my dad was diagnosed.

    in reply to: MDS Caregiver #36694

    Wendy Brizer-Maciol
    Participant

    Sherry, your post is right on target. My father was independent until last September, when my sister became the weekday caregiver and I on the weekends. In Feb, he had to get a HHA 4 days and in the last few weeks before he passed Way on May 2rth, 24/7 care. It is emotionally tough for us watching our loved one through the rough times. A notebook helps and trying to keep your loved one positive.

    in reply to: New Here 2 Trying to R/O MDS #36661

    Wendy Brizer-Maciol
    Participant

    Hi Clint, my dad was a world war 2 marine who just passed away from MDS. We think he got it from being exposed to the Nagasaki bomb. You should seek out an MDS Center of Excellence and get a second opinion.research MDS and exposure from the military, there is a lot of info. Best of luck and feel free to write.

    in reply to: Help! Second opinion for 87 year old dad? #36645

    Wendy Brizer-Maciol
    Participant

    Was your father a veteran?

Viewing 15 posts - 1 through 15 (of 19 total)

Login

Login

Search Forums

Review answers to commonly asked questions or get answers to your questions from an MDS expert