[Wendy Brizer-Maciol]

Praying for you and the family.

[Wendy Brizer-Maciol]

Loss of appetite, tiredness, more frequent transfusions, wanting to sleep a lot. My dear dad passed away in May and those were so.e of some of the symptoms he experienced the last two months.

[Wendy Brizer-Maciol]

I am so sorry to hear about your very young son with MDS and his experience. I truly wish you through best and keep supporting him. My 93 year old dad recently passed from MDS and we went through 4 rounds of Sepsis, but your son is so young.

[Wendy Brizer-Maciol]

From the 13 months that my dad was on Vidaza and blood transfusions, the effect of the long tterm transfusions was more detrimental in the long run than the Vidaza.

[Wendy Brizer-Maciol]

My 92 year old dad had 13 rounds of vidaza with no side effects.

[Wendy Brizer-Maciol]

I am so very sorry for your loss. My father passed away of MDS on May 24th. We have to try and be strong. You did the right thing.

[Wendy Brizer-Maciol]

I am reading about more and more Vets being diagnosed with MDS. I lost my hero 6 weeks ago, my dad a world war 11 Marine. He was exposed to the Nagasaki bomb. I wish you the best.

[Wendy Brizer-Maciol]

Sorry, my father had 13 round of Vidaza.

[Wendy Brizer-Maciol]

My father was a world war 11 marine who just passed away from MDS. I have been trying to research the overall number of vets with MDS.

[Wendy Brizer-Maciol]

I know someone who has been on Vidaza for 8 yyears. It is a friend, as my father was on for 113 months.

[Wendy Brizer-Maciol]

My father had a similar issue with his ankle. Please go to the doctor and get checked.

[Wendy Brizer-Maciol]

This is a wonderful list, which I wish we had when my dad was diagnosed.

[Wendy Brizer-Maciol]

Sherry, your post is right on target. My father was independent until last September, when my sister became the weekday caregiver and I on the weekends. In Feb, he had to get a HHA 4 days and in the last few weeks before he passed Way on May 2rth, 24/7 care. It is emotionally tough for us watching our loved one through the rough times. A notebook helps and trying to keep your loved one positive.

[Wendy Brizer-Maciol]

Hi Clint, my dad was a world war 2 marine who just passed away from MDS. We think he got it from being exposed to the Nagasaki bomb. You should seek out an MDS Center of Excellence and get a second opinion.research MDS and exposure from the military, there is a lot of info. Best of luck and feel free to write.

[Wendy Brizer-Maciol]

Was your father a veteran?

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