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I have Luspatercept injections on a tri-weekly basis. I don’t have any side effects from them other than body aches once in a while. It’s worked well for me to keep my Hgb levels stable (at around 10.x) though I still have extreme fatigue and shortness of breath which goes up and down in severity.
I live in Sacramento and we have a Dr. Lee here who practices acupuncture. I went to her for back pain, after seeing a chiropractor, and she completely cured it in four sessions! She’s not cheap, though, $100 a session, so I’m thinking twice about seeing her for SOB. ChatGPT says that acupuncture can be effective for SOB in some cases, but it’s not infallible. I’ll report back if I go ahead with it.
- This reply was modified 5 months, 3 weeks ago by Scott Davey.
No, I’m still on the same dosages they started me on. The only one I have the dosage on is the Neupogen: filgrastim 480mcg/1.6mL Soln
Commonly known as: Neupogen. Good luck!
Iron is high, but my doctor isn’t worried about it. Just looked it up and high Iron levels can cause fatigue and weakness. Thanks for the tip.
I’m taking Aranesp, but also Granix to keep white blood cells up and Luspatercept, which does an excellent job keeping HgB numbers steady. None of these seem to affect my symptoms (shortness of breath) though.
Thanks for the tips, Karen. I wonder if they can turn the lights off around me next time?