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Hello Joanne, Thank you so much for taking the time to response to my query! It really is great to have this forum
which gives us great access to information we would otherwise not find. Can I ask you if you have other health issues that further influenced your decision to stick with the less aggressive treatment of stem cell transplant?
Thank you very much for the information and link to that webinar. It is hugely helpful . I really appreciate you taking the time to post your response to me.
Wishing you the best.
Really appreciate your thoughts and help in finding the answer to this question!
Thank you so much!!
Hi Jim my husband has just finished his 6th cycle so very close to your own treatment time frame. Our understanding of this protocol is that the chemo injections slow the progression of the MDS disease and so prolonging life for as long as it is effective. It can also reduce excess blasts in the bone marrow and put the patient into remission which is required in order to have a bone marrow transplant. Hope this helps.
Thank you so much Kathleen for your response and positive advice! Can I ask if you were on the azacitidine protocol prior to your stem cell transplant and if so for how long?
Thank you Owen! My husband’s next treatment dates are exactly the same as yours.
Wishing everyone a very Happy Holiday Season.
Thank you Amy! That is reassuring to know.
Hi Joe, my husband was diagnosed last April with High Risk MDS and like you I have done some research on the disease and it is my understanding ( and I might be wrong ) that the IPSS and R-IPSS scoring system prognosis is based on patient’s who have has no treatment. I agree there needs to be more treatment options available in the future .