[Susan Park]

Stacey,
That is so encouraging to hear that you have been 20 years with MDS. He has a 7q deletion (not the -7), as a result of previous cancer treatment. Even though he is staged as low they are saying possible in 5-8 years, he will need intensive intervention (stem cell/bone marrow transplant). Not really sure when one procedure is chosen over the other.
As of his last labs, WBC was actually in the normal range as were RBC. Platelets were just off a very little bit. Next labs are April. Sometimes it feels as if the stress of watching and waiting is going to be worse than the condition.

[Susan Park]

Hi,

My husband was diagnosed 3 weeks ago with low MDS. His is a direct result of previous cancer treamtnet he recieved back in 2016.
I have noticed that some of you have mentioned that although you are low risk, you have started treatment. My husband was told since he is asymptomatic at the moment (0% blasts/wbc has been low since 2016 treamtnet/all else seems to be ok since last labs on 2/14), it will be a watch and wait with labs taken every 3 months. Can anyone tell me why with low they are already being treated? Unitl 3 weeks ago we had never heard of MDS.
thank you.

Marc Sevigny- we live in Florida as well- Brevard County- Viera area north end of melbounre
Sue

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