MDS is a bone marrow failure disorder
MDS is a blood cancer
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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: GVHD crisis #7429

    sparty517
    Member

    Thanks so much for the help. I have passed the information on to her and she is going to check with her doctor and pharmacist to see what they can do. We both pray a lot these days, and everyone who has or is dealing with this disease is included. Good luck!

    in reply to: GVHD crisis #7427

    sparty517
    Member

    Hi Marsha,

    My wife had her transplant in October 2004 and has had GVH in her mouth the past 3-4 weeks. She also had to spend some time back in the hospital because she was having trouble with her mouth which resulted in some type of bacterial infection. She is currently using nose drops, artificial saliva, liquid steroids and other things to try and control the GVH in her mouth. Have you had any luck with any of the treatments you have been given to help control the GVH?

    Glad you made it through things. My wife’s doctor tells us now that the MDS/AML is gone, the thing to watch out for is infections.

    Thanks for your help!

    in reply to: Stem Cell Transplant – need imput from you #6161

    sparty517
    Member

    Christina,

    My wife (56) was diagnosed in August 2004 with MDS (not sure of her classification – RAEB?) and her Doctor immediately suggested the SCT. She had a consolidation round and went home in September, but during that time all her brothers and sisters were tested to find a match. Fortunately her brother was a 6 point match and the SCT was done in October after another round of chemo. She has had some residual issues (liver enzymes and high levels of iron in her blood) but overall the doctors say it went just the way it should have and she is looking forward to almost a complete recovery.

    I am with the others when I say go for the match ASAP. I am certainly not an expert, but the results my wife has had with the SCT have been excellent!

    in reply to: High Iron Levels – High Liver Enzymes #6145

    sparty517
    Member

    Great information! Thanks for the help!

    Sparty

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