MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: TRANSFUSIONS #9331
    stacyl
    Member

    is it possible to get the transfusion in your leg? when i had lyme disease years back, they said they could use my legs and it would probably last longer. something to ask before the port.

    in reply to: new member again #9237
    stacyl
    Member

    your husband’s age is definitely something to consider. right now, he’s still at an age where a full transplant is an option. plus, there are many doctors who “write you off” after 60. does your husband have disability insurance? if not now, it may be helpful someday.

    in my dad’s case, he had no symptoms either. mistakenly found out his numbers were off when he needed gall bladder surgery in march 2004. he was fine with no symptoms up until august 2005. it seemed like he fell off a steep cliff the way he declined so fast. so quickly that one week we walked all over disneyworld together (he carried my 3 year old) and the next week, he was too weak to walk the dog. in september, he basically stopped working (he tries to work from home, if he’s lucky he gets a few hours in via phone, but is exhausted after)and he’s getting 2 or 3 tx’s a week. my point – it was really FAST and we weren’t prepared.

    it would be wonderful for your husband to be symptom-free for such a long time… but, just keep it in mind when you’re making your decision. Good Luck and many healthy wishes for you both!

    in reply to: Why do some members … #8949
    stacyl
    Member

    in response to patti: one company that does accept donated cord blood is lifebank. i believe it may be the only company that does it, at this time. although it is a donation, you still have to pay about $1000 for the retrieval cost and doctors cost, etc. the payment kind of acts like insurance… if you donate and someone in your immediate family is in need, all “donations” on hand would be tested for possible match. for more info, visit http://www.lifebankusa.com

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