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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • April 1, 2019 at 6:46 pm in reply to: The Final Days #46395
    christina neumann
    Participant

    thank you, Rose, for that. It was a very brave thing to write. I’m glad you did write as it does help those of us who probably will face this in the future. We do not deal with death in this culture much and yet, we all will go there. Thank You again, and kind thoughts to you in this difficult time.

    February 15, 2019 at 11:52 am in reply to: On Dacogen and Needing Blood #45105
    christina neumann
    Participant

    Hi Amy,
    My husband just finished round 3 of Dacogen and has continued to need both platelets and blood. We’re hoping that the need for both starts to drop with this round but as of today, he’s going in for platelets. His hemoglobin is 10.6 so for us that’s terrific as it has been below 8 often. Also, his energy has been pretty good overall so we’re happy about that too. It’s hard to know what to expect so hang in there.

    December 20, 2018 at 8:43 am in reply to: confirmed as MDS high risk #44755
    christina neumann
    Participant

    Thanks Alan. appreciate the response.

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