MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • in reply to: Missing Zarxio injections for a trip #58424
    Terry
    Participant

    Jack, Michael, and Kenan thank you for your responses and kind wishes. Appreciate it. Kenan, you are so right, a cruise is something he really would like to do and I want to make it happen. Hopefully, we can make it work
    Thank you!

    in reply to: Treatment for low risk MDS -VS – No treatment #57296
    Terry
    Participant

    Michael,
    Your response was very informative. I do realize that each case is quite different for each individual. Viewing the different topics in this forum I realized that right away! It is helpful to read how others are being treated and the different possibilities of treatment for MDS. Also to see some of the treatments others have that either help with the symptoms or fail to help. You are very knowledgeable about your disorder and I strive to learn everything I can to be able to support my husband and his decisions on his MDS. Thank you Michael for your response. I appreciated it.

    in reply to: Treatment for low risk MDS -VS – No treatment #57294
    Terry
    Participant

    Thank you for your response.
    It is amazing how MDS has so many different variances as far as which cells are affected the most. One type is treated with medication for symptoms, while another is treated with blood transfusions. And at some point chemo for all of them. It’s hard to know what to do at times. Just trust!
    I wish you the best in your watch and wait and pray that all goes well for many years.

Viewing 3 posts - 1 through 3 (of 3 total)

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