MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Reblozyl/Luspatercept #58738
    Tricia Dieck

    Thank you for sharing, Kenan. My mom is in a similar situation with Luspatercept, however she has not turned the corner and her HGB is hovering around 7.2. She too has ring sideroblasts and the sf3b1 mutation. She has the specific MDS with 5q-. Do you have 5q- as well? Just trying to get more information to see if she may react similarly to you.

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