MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: MDS to AML=No hope? #51392
    Wen Ouyang
    Participant

    Thank you kathy and moderator for your response! I agree that quality of lives is more important that the length of lives. I will try my best to support my raised cheer him up. Best wish to you kathy!!

    Wen

    in reply to: Venetoclax and Vidaza #50571
    Wen Ouyang
    Participant

    Hi Cliff,
    My dad also started Venetoclax and Vidaza treatment 3 months ago and he just finished the 3rd cycle. My dad was diagnosed as MDS patient with 16% blasts in June 2018 and started Vidaza in Aug 2018. His blast was reduced to 9% in Sep 2019 but counts are not catching up. So our doctor recommended us to try venotoclax+vidaza. In the first two cycles he was tolerating it well, although we didn’t see the counts improved (our doctor told us it is normal). We continued to 3rd cycle and it became tough for him. He had been having different infections and his counts dropped further (WBC 0.5, plat 7). He has been receiving frequent blood transfusions as well(every other week).

    After a week of 3rd cycle, he seems to recover a bit and we will see if there is any improvement to his counts.
    we were advised that they may stop the treatment if they don’t see that is working for him, so we don’t know if there will be 4th cycle. Finger crossed for us! and will keep you posted for further results.

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