Forum Replies Created
Katie Ask about compression socks if he isn’t already using them. Willie
Katie Hang in there. Your dad is doing what he can right now – along with the medical help. Be sure that he gets up and walks. Review this with the medical staff but I think that they will want him walking as soon as possible.
Susie When we tried Stanford as an alternate facility, they would not take a patient without a doctor referral. It was also hard to get past the voice mail setup. When my wife was treated at the SCCA there were others there that were referrals from Stanford. Best of luck for your mom. Willie
Katie Have them try pediatric tape on your dad’s sensitive skin. It worked great for my wife. If I can remember the name of it I’ll pass it along.
Best of luck to your dad. Willie
Alex & Twin – I am very sorry for your loss. Willie
Rachel All of the people at the SCCA will treat you and your family well. Willie
Linda My wife had intense heating of the Sweet’s spots. She is the only persom with whom I am familiar. Willie
Linda The large rash you see could possibly be Sweet’s Syndrome – often a precursor to MDS. Thinking of the both of you.
Rachel You will find that the people at the SCCA are very welcoming and attentive. You will be accepted into their neighborhood on a 24 hour/day basis. Willie
CA Mom I am very sorry for the loss of your father. My thoughts are with you and yours. Time will help you deal with your loss. Willie
Alex You found the right place. Willie
Jan I am sorry to read of your mom – she did try to deal with this disease for a long time. My thoughts go to you, your family and friends Willie
Campbell My thoughts are with you and your family. You will be surprised who will pop up to help you. Willie
Patti My thoughts are with you and yours. Thank you for sharing your constant efforts with us. Willie
Patti I know that the last two years have been tough for both of you. I really appreciate the effort and concern you have given to this forum. Even though you know that it is the disease that taking her, it still hurts to know that you have to let her go. Your sorrow won’t go away but it will become less painfull. Thinking of you both, Willie