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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 1 through 15 (of 82 total)
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  • Author
    Posts
  • July 23, 2007 at 1:10 am in reply to: My Dad #18354
    willie
    Member

    Katie Ask about compression socks if he isn’t already using them. Willie

    July 17, 2007 at 6:45 am in reply to: My Dad #18350
    willie
    Member

    Katie Hang in there. Your dad is doing what he can right now – along with the medical help. Be sure that he gets up and walks. Review this with the medical staff but I think that they will want him walking as soon as possible.
    Willie

    July 7, 2007 at 6:22 pm in reply to: Referrels #18692
    willie
    Member

    Susie When we tried Stanford as an alternate facility, they would not take a patient without a doctor referral. It was also hard to get past the voice mail setup. When my wife was treated at the SCCA there were others there that were referrals from Stanford. Best of luck for your mom. Willie

    July 4, 2007 at 12:11 am in reply to: My Dad #18340
    willie
    Member

    Katie Have them try pediatric tape on your dad’s sensitive skin. It worked great for my wife. If I can remember the name of it I’ll pass it along.
    Best of luck to your dad. Willie

    June 26, 2007 at 4:11 am in reply to: My mother just died… #18489
    willie
    Member

    Alex & Twin – I am very sorry for your loss. Willie

    June 26, 2007 at 4:07 am in reply to: My baby has MDS #18151
    willie
    Member

    Rachel All of the people at the SCCA will treat you and your family well. Willie

    June 19, 2007 at 5:17 am in reply to: Please help- MOM VERY SICK #18563
    willie
    Member

    Linda My wife had intense heating of the Sweet’s spots. She is the only persom with whom I am familiar. Willie

    June 18, 2007 at 3:50 am in reply to: Please help- MOM VERY SICK #18561
    willie
    Member

    Linda The large rash you see could possibly be Sweet’s Syndrome – often a precursor to MDS. Thinking of the both of you.
    Willie

    May 23, 2007 at 4:58 am in reply to: Smoking and MDS and WBC Counts #18160
    willie
    Member

    Rachel You will find that the people at the SCCA are very welcoming and attentive. You will be accepted into their neighborhood on a 24 hour/day basis. Willie

    May 23, 2007 at 4:51 am in reply to: my dad passed away from aml #18200
    willie
    Member

    CA Mom I am very sorry for the loss of your father. My thoughts are with you and yours. Time will help you deal with your loss. Willie

    April 19, 2007 at 4:24 am in reply to: New Member #17830
    willie
    Member

    Alex You found the right place. Willie

    April 17, 2007 at 6:57 am in reply to: Mom is done with Hospice home with God #17802
    willie
    Member

    Jan I am sorry to read of your mom – she did try to deal with this disease for a long time. My thoughts go to you, your family and friends Willie

    April 17, 2007 at 6:53 am in reply to: My heart is breaking. #17771
    willie
    Member

    Campbell My thoughts are with you and your family. You will be surprised who will pop up to help you. Willie

    April 11, 2007 at 4:51 am in reply to: Sometimes it just helps to share the burden…. #17651
    willie
    Member

    Patti My thoughts are with you and yours. Thank you for sharing your constant efforts with us. Willie

    April 3, 2007 at 4:55 am in reply to: Sometimes it just helps to share the burden…. #17626
    willie
    Member

    Patti I know that the last two years have been tough for both of you. I really appreciate the effort and concern you have given to this forum. Even though you know that it is the disease that taking her, it still hurts to know that you have to let her go. Your sorrow won’t go away but it will become less painfull. Thinking of you both, Willie

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