MDS is a bone marrow failure disorder
MDS is a blood cancer
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Membership

This year nearly 90,000 people will be told they have MDS worldwide – 12,000 to 18,000 newly diagnosed MDS patients in the United States alone. The MDS Foundation, Inc. is working hard to support these patients and the loved ones who care for them. We are asking for your membership support in our global efforts to change the outcomes of MDS.

  • At your time of diagnosis
    “It took a long time to wrap our heads around a disease without a cure when my husband felt just fine – The MDS Foundation gave me the information I so badly needed to be a good caregiver. The MDS Foundation was there when we needed it desperately.”

    The Cook Family
    Janice Cook, MDS Caregiver, 70 years old, 2 children,
    1 grandchild (“Grandpa’s best medicine”)
  • For referrals to a specialist
    “She asked if I would like for her to make an appointment. We had an appointment WITHIN A WEEK and were treated royally. That is some seriously appreciated clout. Now anyone out there experiencing MDS in your family or with friends I tell from experience there is ONLY ONE KIND of doctor you should be seeing: A DOCTOR RECOMMENDED BY THE MDS FOUNDATION”

    The Fournier Family
    Tim Fournier, MDS Patient, 79 years old, 3 children, 8 grandchildren
  • Always
    “When I was diagnosed with MDS in 2008, the MDS Foundation became my primary source of accurate, comprehensive and understandable information about this complex and challenging bone marrow disease. I donate to the MDS Foundation because it’s an unparalleled resource for patients, caregivers, treatment providers and researchers. Additionally, I donate because of the wonderful, caring professional staff.”

    MDS patient, 68 years old

Benefits of membership

  • You are part of the solution to change MDS outcomes. Your membership fee helps support global physician and patient educational initiatives, and helps to empower patients with courage and hope.
  • Updates on the status of our Global Centers of Excellence and their live patient and family forum events that allow for more rapid dissemination of new research and treatment developments.
  • Information on the latest clinical trials to potentially share or participate in.
  • Access to MDS awareness materials to share with family and friends.
  • Opportunities to participate in or host support group events with your friends & community.
  • Receive two printed issues of The MDS News, which includes the latest on MDS research as well as inspiring patient and caregiver stories.

How Does Your Membership Help?

  • Your membership supports over 1,000 educational packets to families and caregivers free of charge annually, to help navigate through their MDS diagnosis.
  • Your membership helps our Patient Liaison respond to over 1,300 on-line requests annually.
  • Your membership supports over 180 Centers of Excellence worldwide. We believe this is imperative as these centers serve as our patient referral base, and this partnership helps the MDS community collaborate and engage in innovative practices in the diagnosis and care of MDS patients.
  • Your membership helps to distribute over 8,000 translated pieces of MDS materials annually.
  • Your membership enables MDSF to support approximately 250 professionals collaborating through International Working Groups – with researchers in 37 countries, and on 6 of the 7 continents.
  • Your membership helps to educate patients, caregivers and professionals at live events. In May 2019, MDSF will host our International Symposia in Copenhagen, Denmark. We anticipate 1,200 professionals in attendance. We will also host 11 live patient events.

2018 MDS Patient Membership Options – Click here to apply:

  • $35 – Community Membership (includes benefits listed above)
  • $70 – Sharing Hope Membership (includes benefits listed above as well as a membership scholarship for a patient or caregiver in need)
  • $250 – Changing the Future of MDS Membership (includes benefits listed above as well as additional support for the MDS Foundation as we work together to change the future of MDS) Member names are listed on the MDSF website.

2018 MDS Professional Membership Options – Click here to apply:

  • $50 – Community Professional Membership – (includes discounted registration rates at MDSF meetings, discounted subscription rates to Leukemia Research, as well as access to MDSF resources for distribution to your patients)
  • $250 – Changing the Future of MDS Professional Membership (includes discounted registration rates at MDSF meetings, discounted subscription rates to Leukemia Research, access to MDSF resources for distribution to your patients, as well as the opportunity to present at MDSF patient events in your region. In addition, $50 of your membership will help support a Professional outside of the United States that represents a CoE in financial need. Member names are listed on the MDSF website.
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