January 9, 2021: Updates from ASH 2020: Promising Treatment Advances for MDS and AML @12 pm ET Speaker: Amy Elizabeth DeZern, MD, MHS; Johns Hopkins Sidney Kimmel Comprehensive Cancer Center
Updates from ASH 2020 will be presented. This webinar will provide an overview of new emerging treatments for MDS and AML patients. The latest promising clinical trials and research findings impacting the biology and treatment of MDS and AML patients will be discussed. View WebinarQ&A
February 6, 2021: MDS: Understanding Disease Characteristics and Progression @12 pm ET Speaker: Azra Raza, MD; Columbia University Medical Center
This webinar will provide an overview of MDS and how prognosis is determined, focusing on the MDS subtypes and disease progression. Understanding the diagnosis of MDS, details about the various approaches to treatment, and answers to common questions will be discussed. View Webinar
March 13, 2021: MDS: Factors to Consider in the Initial Treatment Approach @12 pm ET Speaker: Yazan Madanat, MD; University of Texas Southwestern Medical Center
This webinar will provide an overview of MDS and what treatment path to take in a patient newly diagnosed with myelodysplastic syndromes. Factors, such as: the type of MDS; the prognostic score (risk score) of the MDS; a person’s age, overall health, and preferences will be discussed. View WebinarQ&A
March 20, 2021: MDS & COVID-19 Vaccine Webinar @12 pm ET Peter T. Curtin, MD and Randy A. Taplitz, MD; City of Hope Medical Center
This webinar will provide an overview of COVID-19 and myelodysplastic syndromes including frequently asked questions. The latest COVID-19 vaccines and what they mean for those with bone marrow failure disorders will be discussed. View Webinar
April 17, 2021: Clinical Implications of Genetic Mutations in Myelodysplastic Syndromes @12 pm ET Rami Komrokji, MD; Moffitt Cancer Center
This webinar will provide an overview of recent advances in the genetic understanding of MDS, with a particular focus on the emerging role for mutational data in clinical management as a potential tool to assist in diagnosis, risk stratification, and therapeutic decision-making. View Webinar
May 8, 2021: Transfusion Dependence and Transfusion Support in MDS @12 pm ET Lewis R. Silverman, MD; Icahn School of Medicine at Mount Sinai
This webinar will provide an overview of transfusion dependency in MDS, focusing on blood transfusion benefits and risks. Understanding the impact of transfusion dependence, and answers to common questions will be discussed. View Webinar
June 5, 2021: Becoming a Partner in Your Care: MDS Support Group @12 pm ET Sandra Kurtin, PhD, ANP-C, AOCN; The University of Arizona Cancer Center
Join us for a free webinar to support our patients and loved ones. This webinar will address all aspects of becoming a partner in your care. We invite you to learn more about self-care, and the physical, social, and emotional challenges that patients and caregivers face. Whether you are a patient or caregiver, you will be able to connect with others, gather ideas, learn about resources, and ask questions. View Webinar
17 de julio de 2021: Webcast de MDS en Español @12 pm hora del este Que son los sindromes mielodisplasicos? Guillermo Montalbán Bravo, MD, MD Anderson Cancer Center
Este seminario les va a proveer como se determina el diagnóstico de MDS, se estará enfocando en los subtipos y la manifestación de MDS. Comprendiendo el diagnostico de MDS y los detalles de los diferentes tratamientos, y las respuestas a las preguntas más comunes serán desarrolladas. Avances en el tratamiento de los sindromes mielodisplasicos. Guillermo Garcia-Manero, MD, MD Anderson Cancer Center
Además, estaremos proveyendo los tratamientos y estrategias para los pacientes de MDS. Las últimas pruebas clínicas que son muy positivas y prometedor y el tratamiento y la biología de los pacientes con MDS que van a ser revisados. Moderado por Jessica MacIntyre, APRN, NP-C, AOCNP, Sylvester Comprehensive Cancer Center
Este webinar se presentará en español. View Webinar
August 7, 2021: Outcomes for High-Risk MDS Patients Undergoing Transplant vs Standard Non-Transplant Therapies @12 pm ET Erica D. Warlick, MD, University of Minnesota Medical Center
This webinar will provide an overview of the role of allogeneic hematopoietic cell transplantation (alloHCT) for high-risk MDS patients. Standard therapies for patients with MDS including hypomethylating agents (HMAs) and a variety of novel agents outside of allogeneic HCT will be discussed. View Webinar
12 PM – 2 PM ET September 25, 2021 – Toronto MDS Patient Webinar Updates from EHA 2021: Promising Treatment Advances for MDS and AML – Heather Leitch, MD,St. Paul’s Hospital, Vancouver, Canada
Updates from the European Hematology Association (EHA) 2021 Virtual Congress will be presented. This webinar will provide an overview of new emerging treatments for MDS and AML patients. The latest promising clinical trials and research findings impacting the biology and treatment of MDS, and AML patients will be discussed.The Role of Allogeneic Stem Cell Transplant in MDS – Bart L. Scott, MD,Fred Hutchinson Cancer Research Center, Seattle, Washington
This presentation will focus on reduced-intensity allogeneic stem-cell transplantation as a treatment option for MDS and describe strategies to manage treatment side effects as well as potential long-term and late effects of hematopoietic cell transplantation.Aplastic Anemia and Myelodysplasia Association of Canada – Cindy Anthony, Executive Director,AAMAC
About AAMAC and its resources for patients, caregivers and healthcare providers will be discussed. View Webinar
October 16, 2021: CAR T Cell Therapy in MDS/AML @12 pm ET David A. Sallman, MD, Moffitt Cancer Center
This webinar will provide an overview on CAR T cell immunotherapy, an approach that takes patients’ own immune cells and equips them with chimeric antigen receptors (CARs) that enhance their ability to target and eliminate cancer cells. Recent advances leading to next-generation CAR T therapies for MDS/AML patients will be discussed. View Webinar
2020 Webinars for MDS Patients & Caregivers
June 13, 2020: Treatment of High Risk MDS and the Indication for Stem Cell Transplant @12 pm EDT Speaker: Prapti Patel, MD; University of Texas Southwestern
This webinar will provide an overview of high-risk MDS, secondary AML, and indication for stem cell transplant, focusing on strategies for patient management. Risk assessment, treatment options, as well as resources for patients and caregivers will be discussed. View PresentationView webinarnow available in Spanish, Italian, French, Chinese (Mandarin), Hindi, Turkish, Greek, Serbian, and Polish!
June 27, 2020: Familial MDS @ 12 pm EDT Speaker: Jane Churpek, MD, MS; UW Carbone Cancer Center, University of Wisconsin School of Medicine
This webinar will provide an overview of familial MDS, focusing on whether MDS is hereditary and can you give MDS to loved ones. Inherited genetic predisposition for developing MDS and congenital abnormalities will be discussed. View PresentationQ&A
July 18, 2020: Low-Risk MDS: Can we prevent progression? Updates from EHA 2020 will also be presented. @12 pm EDT Speaker: Casey L. O’Connell, MD; University of Southern California, Keck School of Medicine
This webinar will provide an overview summarizing changes in the treatment landscape for patients with low-risk myelodysplastic syndromes. The concerns of low-risk MDS patients and their caregivers will be addressed. View PresentationQ&AView webinarnow available in Spanish, Italian, French, Chinese (Mandarin), Hindi, Turkish, Greek, Serbian, and Polish!
July 25, 2020: What is MDS? How Do We Determine Prognosis? @ 12 pm EDT Speaker: Jamile Shammo, MD; Rush University Medical Center
This webinar will provide an overview of MDS and how prognosis is determined, focusing on the MDS subtypes and disease process of MDS. Understanding the diagnosis of MDS, details about the various approaches to treatment, and answers to common questions will be discussed. View PresentationQ&AView webinarnow available in Spanish, Italian, French, Chinese (Mandarin), Hindi, Turkish, Greek, Serbian, and Polish!
August 8, 2020: MDS Therapies & Options in 2020 @12 pm EDT Speaker: James M. Foran, MD, FRCPC; Mayo Clinic Cancer Center, Jacksonville, FL
This webinar will provide an overview of the current treatment strategies for MDS patients. The latest promising clinical trials and research findings impacting the biology and treament of MDS patients will be discussed. View Presentation
August 29, 2020: Emerging Treatments for Low-Risk MDS @12 pm EDT Speaker: Barry Skikne, MD, The University of Kansas Cancer Center
This webinar will provide an overview on low-risk MDS focusing on strategies for patient management. Details on the various approaches to treatment including new promising clinical trials and answers to concerns of patients will be discussed. View PresentationQ&A
September 26, 2020: MDS Support Group Webinar @12 pm EDT Speaker: Jean A. Ridgeway, DNP,APN,NP-C,AOCN MDS Foundation International Nurse Leadership Board
This webinar will address all aspects of becoming a partner in your care. Whether you are a patient or caregiver, you will be able to connect with others, gather ideas and learn about resources. View Presentation
October 10, 2020: Stem Cell Transplant for MDS @12 pm EDT Speaker: Joseph P. McGuirk, D.O. University of Kansas Medical Center
This webinar will provide an overview of the epidemiology of MDS. Risk Assessment, IPSS-R Prognostic Risk Categories, Allogeneic HCT will be discussed. View Presentation
Upcoming 2022 Webinars for MDS Patients & Caregivers
January 22, 2022 Focus on Understanding Clinical Trials and How to Identify the Right One for You @12 pm ET Speaker: Andrew M. Brunner, MD; Massachusetts General Hospital; Assistant Professor, Medicine, Harvard Medical School
Today’s standard treatments for patients are based on previous clinical trials and it is important to think of clinical trials as a possible treatment option instead of a last resort. Novel targets and targeted agents in clinical trials showing promise in the treatment of MDS and AML will be discussed. Hear what clinical trials are all about and if they are right for you. The most promising research from the 2021 American Society of Hematology (ASH) will also be presented. View WebinarQ&A
February 12, 2022: Optimizing Transfusion Support in MDS @ 12 pm ET Speaker: Lindsay R. Wilde, MD; Sidney Kimmel Cancer Center at Thomas Jefferson University Hospital, Philadelphia, PA
This webinar will explain how transfusion support can be optimized in the treatment of myelodysplastic syndromes (MDS). Strategic benefits and blood transfusion best practices will be discussed. View WebinarQ&A
March 26, 2022: Advances in our Understanding of the Management of MDS @12 pm ET Speaker: Michael Keng, MD; University of Virginia, Emily Couric Clinical Cancer Center, Charlottesville, VA
This webinar will describe recent advances in our understanding of the management of myelodysplastic syndromes and related myeloid neoplasms, and how these advances are being translated into more effective treatments for these patients. View Webinar
May 21, 2022: Precision Medicine in MDS and AML @12 pm ET Speaker: Rory Shallis, MD; Yale School of Medicine, New Haven, CT
Precision medicine can be simply defined as the identification of personalized treatment that matches patient-specific clinical and genomic characteristics. Learn about current standard treatment options, emerging treatment strategies, and the importance of genetic testing to identify mutations that may impact treatment. View Webinar
June 25, 2022: Becoming a Partner in Your Care: MDS Support Group @12 pm ET Speaker: Sara M. Tinsley, PhD, APRN, AOCN; Moffitt Cancer Center, Tampa, FL
Join us for a free webinar to support our patients and loved ones. This webinar will address all aspects of becoming a partner in your care. We invite you to learn more about self-care, and the physical, social, and emotional challenges that patients and caregivers face. Whether you are a patient or caregiver, you will be able to connect with others, gather ideas, learn about resources, and ask questions. View Webinar
July 23, 2022: Living with Chronic Fatigue: I’m Not Just Tired @12 pm ET Speaker: Brandi Reeves, MD; Lineberger Comprehensive Cancer Center, UNC-Chapel Hill School of Medicine, Chapel Hill, NC
Chronic fatigue is the most common and severe symptom in myelodysplastic syndromes (MDS) and has a strong negative association with health-related quality of life. This webinar will provide an overview of transfusion dependency in MDS, focusing on blood transfusion benefits and risks. Understanding the impact of transfusion dependence, and answers to common questions will be discussed. View Webinar
