MANY PATIENTS AND CAREGIVERS HAVE NEVER MET ANOTHER PERSON DIAGNOSED WITH MDS UNTIL THEY CONNECTED WITH THEM AT ONE OF OUR FORUMS. IF YOU’VE NEVER ATTENDED ONE, YOU WON’T WANT TO MISS THIS OPPORTUNITY TO MEET OTHERS AND TO LEARN MORE ABOUT MDS, CURRENT TREATMENTS, AND EMERGING THERAPIES FROM LEADING EXPERTS. NOT ONLY WILL YOU FIND ANSWERS, SUPPORT AND HOPE FOR MDS BUT YOU WILL LEARN TIPS AND STRATEGIES FOR PATIENTS AND CAREGIVERS LIVING WITH MDS.

SAVE THE DATE AND MARK YOUR CALENDAR FOR THE LOCATION NEAREST YOU!

September 10: Salt Lake City, Utah – View Agenda  – View Presentation
October 15: Nashville, Tennessee – View Agenda   – View Presentation
November 5: Dallas, Texas – View Agenda  – View Presentation 1  –  View Presentation 2
UPDATED DATE – January 21st, 2023: Tucson, Arizona – View Agenda – Register Now

THE DIAGNOSIS OF MDS IS OFTEN UNEXPECTED AND FILLED WITH BOTH IMMEDIATE AND LONG-TERM CHALLENGES. YOU PROBABLY HAVE MANY QUESTIONS. WHETHER YOU ARE A NEWLY DIAGNOSED PATIENT, A LONG-TERM SURVIVOR, OR CAREGIVER, OUR FREE ONE-DAY LIVE IN-PERSON FORUMS WILL HAVE SOMETHING FOR YOU.

REGISTRATION IS REQUIRED

To register by phone or for any questions, call or email Janice Butchko at 1-800-637-0839 Ext. 212; email: jbutchko@mds-foundation.org.

DON’T MISS OUT ON THESE INFORMATIVE, FREE EVENTS.

Please make sure to regularly check our website and Facebook for details.

Upcoming Patient Forums

Registration Opening Soon

View All

Previous Patient Forums

Audio recordings and transcripts available

View All

Upcoming Patient Forums

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• September 10: Salt Lake City, Utah – Registration Coming Soon!
• October 15: Nashville, Tennessee – Registration Coming Soon!​
• November 5: Dallas, Texas – Registration Coming Soon!
• November 19: Tucson, Arizona – Registration Coming Soon!

Previous Patient Forums

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• 2020 Forums

  • February 1: Birmingham, AL

    • Presentations:
    • – What Is MDS? – Kimo Bachiashvili, MD, UAB Comprehensive Cancer Center
    • – How We Treat Low-Risk MDS – Kimo Bachiashvili, MD, UAB Comprehensive Cancer Center
    • – Bone Marrow Transplant in MDS – Omer Jamy, MD, UAB Comprehensive Cancer Center
    • – High-Risk MDS and Clinical Trials – Pankit Vachhani, MD, O’Neal Comprehensive Cancer Center at the UAB

  • February 22: Houston, TX

    • Presentations:
    • – Myelodysplastic Syndromes 2020 – Guillermo Garcia-Manero, MD, Professor of Medicine Chief, Section of MDS, MD Anderson Cancer Center

• 2019 Forums

  • February 2: Los Angeles, CA

    • Presentation:
    • – Understanding & Treating Myelodysplastic Syndrome (MDS) – Dr. Casey O’Connell, MD

  • March 9: Phoenix, AZ

    • Presentation:
    • – Myelodysplastic Syndrome – Dr. Jeanne Palmer

  • March 30: Jacksonville,  FL

    • Presentation:
    • – Myelodysplasia Syndromes: Therapies & Options in 2019 – Dr. James M. Foran, MD, FRCPC

  • April 27: Pittsburgh, PA

    • Presentations:
    • – MDS Therapies and Treatment Options 2019: Salman Fazal, MD – Allegheny Health Network
    • – Psychosocial Challenges with MDS: Kimberly Fleming, PhD – Clinical Assistant Professor, Allegheny Health Network

  • May 11: Copenhagen, Denmark

    • Presentations:
    • – Stine Ulrik Mikkelsen, MD, PhD student
      Department of Hematology/The Epi-/Genome Lab
      Rigshospitalet
      Copenhagen, Denmark
      

  • June 22: Baltimore, MD

    • Presentations:
    • – MDS: Classificationand Risk Scores – Vu H. Duong, MD, MS
      
    • – MDS: NavigatingLower Risk Disease – Vu H. Duong, MD, MS
      
    • – What is Myelodysplastic Syndrome? – Maria R. Baer, M.D.
      
    • – Navigating Higher-Risk Myelodysplastic Syndromes – Maria R. Baer, M.D.
      

  • July 20: Iowa City, IA

    • Presentations:
    • – Myelodyplastic Syndromes and Promising New Drugs in Genome Era – Carlos Vigil-Gonzales, MD University of Iowa Hospitals and Clinics
      

  • August 10: Seattle, WA

    • Presentations:
    • – What is MDS? How Do We Determine Prognosis? – Bart Scott, M.D., Associate Member, FHCRC, Associate Professor, UWMC
      
    • – Myelodyplastic Non-transplant Therapy for MDS – Bart Scott, M.D., Associate Member, FHCRC, Associate Professor, UWMC
      
    • – Hematopoietic Cell Transplantation (HCT) for MDS – H.Joachim Deeg, Fred Hutchinson Cancer Research Center, University of Washington, Seattle
      
    • – Evaluation and care of patients and families with inherited predisposition to develop MDS – Sioban Keel, MD, Associate Professor of Medicine
      
    • – MDS/MPN: What it is and How it
      Should be Treated? – Rachel Salit, MD, Assistant Member, Fred Hutchinson Cancer Research Center
      

  • September 19: Nashville, TN

  • October 12: Kansas City, MO

    • Presentations:
    • – MDS Foundation Meeting 2019: Barry Skikne MD, FACP,FCP(SA) – Professor of Medicine University of Kansas Medical Center
    • – Stem Cell Transplant for MDS: Joseph McGuirk, DO – University of Kansas Medical Center
    • – Myelodysplastic Syndromes: Abdulraheem Yacoub, MD – University of Kansas Medical Center

  • November 9: Dallas, TX

    • Presentations:
    • – Treatment of High Risk MDS and the Indication for Stem Cell Transplant: Prapti Patel, MD, UT Southwestern Simons Cancer Center
    • – What is MDS? How do we predict prognosis? : Stephen Chung, MD, UT Southwestern Simons Cancer Center
    • – Management of Lower-Risk MDS: Yazan Madanat, MD, UT Southwestern Simons Cancer Center

• 2018 Forums

  • February 3rd: La Jolla, CA

    • Presentation:
    • – Myelodysplastic Syndromes: Disease Overview, New Therapies, and Treatment Options

  • March 3rd: Albuquerque, NM

    • Presentation:
    • – Myelodysplastic Syndrome: A Family-Oriented Approach on Diagnosis and Treatment Options

  • April 28th: Pittsburgh, PA

    • Presentation:
    • – Myelodysplasia: What do we think, what do we know, what can we prove?

  • May 5th: Salt Lake City, UT

    • Presentation:
    • – Myelodyplastic Syndromes – Paul J. Shami, M.D.  

  • June 9th: Short Hills, NJ

    • Audio Recordings: Part 1 – Dr. Schaar , Part 2 – Dr. Golberg , Part 3 – Sara Tinsley
    • Presentations:
    • – Myelodyplastic Syndromes: Diagnosis, Treatments & Support – Dr. Dale Schaar, MD, PhD
    • – What you need to know about Myelodyplastic Syndromes – Dr. Stuart Goldberg, MD

  • June 13th: Stockholm, Sweden

    • Audio Recordings: Part 1 , Part 2
    • Presentations:
    • – Agenda
    • – Forum Presentation

  • July 21st: Boston, MA

    • Presentations:
    • – What you need to know about Myelodyplastic Syndromes – Dr. Stuart Goldberg, MD
    • – New and Emerging Therapies for Myelodysplastic Syndromes – Dr. Brunner, MD

  • August 11th: Minneapolis, MN

    • Presentations:
    • – MDS: Understanding Your Diagnosis and Current & Emerging Treatments – Dr. Warlick, MD

  • September 29th: Cincinnati, OH

    • Presentations:
    • – Myelodysplastic Syndromes Updates – Zartash Gul, MD

  • November 10th: Miami, FL

    • Not available

  • December 15th: Charlottesville, VA

    • Presentations:
    • – Myelodysplastic Syndromes: Patient Forum – Dr. Michael Keng, MD

  
  
  
  
  
  
  
  
  
  
  

• 2017 Forums

  • February 25th (Rare Disease Day): Gainesville, FL

    • Audio Recordings – Part 1, Part 2, Part 3, Part 4
    • Transcripts – Part 1, Part 2, Part 3, Part 4
    • Presentations:
    • – MDS: Disease, Diagnosis & Treatment – Dr. Cogle
    • – Treatment Options for Lower-Risk MDS
    • – Bone Marrow Transplant in MDS – Dr. Narayan

  • May 5: Valencia, Spain

    • Audio/Visual Recording

  • May 20: Seattle, WA

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2, Part 3
    • Presentations:
    • – What is MDS? How do we Determine Prognosis?
    • – Non-Transplant Therapy for MDS
    • – Hematopoietic Cell Transplantation for MDS
    • – Patient Tailored Therapy
    • – MDS/MPN: What it is and How it Should be Treated?

  • May 20: Chicago, IL

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2
    • Presentations:
    • – What is MDS? What are the Treatment Options? Clinical Trials for MDS
    • – Bone Marrow Transplants for MDS
    • – New Approaches to Evaluate and Optimize Older Patients for Transplantation in MDS

  • June 17: Middletown, NJ

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2

  • September 9th: Buffalo, NY

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2

  • October 28th: Stanford, CA

    • Transcript
    • Video Recording
    • Presentations:
    • –The Myelodysplastic Syndromes and their Treatments
      Peter Greenberg, MD
      Stanford University Cancer Center
      Director, Stanford MDS Center, Hematology Division
    • –Molecular Advances in Understanding MDS
      Alex Aleshin, MD
      Stanford University Cancer Center
      Hematology Division
    • –Bone Marrow Transplants for MDS Patients
      Lori Muffly, MD
      Stanford University Cancer Center
      Bone Marrow Transplantation Unit
    • –Quality-of-Life Session with Open Discussion
      Mary L. Thomas, RN, MS, CNS
      Hematology Clinical Nurse Specialist
      VA Palo Alto Health Care System

  • October 28th: Atlanta, GA

    • Audio/Video Recording
    • Transcript

  • November 1st: Bronx, NY

    • Audio Presentations:
    • – What is MDS? – Amit Verma, MD
    • – How is MDS Treated? – Aditi Shastri, MD
    • – Bone Marrow Transplants for MDS Patients – Ira Braunschweig, MD
    • – Clinical Trial Options for MDS Patients – Amit Verma, MD
    • Transcripts – Part 1, Part 2, Part 3, Part 4
    • Presentations:
    • – MDS Decision Model
    • – What is MDS?
    • – MDS Clinical Trials at Einstein and Montefiore

  • November 18th: San Antonio, TX

    • Audio Recordings – Part 1, Part 2, Part 3
    • Transcripts – Part 1, Part 2, Part 3

  
  
  
  
  
  
  
  
  
  

• 2016 Forums

  • February 27: Tampa, FL

    • Audio Recording
    • Transcript

  • February 27: Los Angeles, CA

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2

  • April 2: Austin, TX

    • Audio Recordings – Part 1, Part 2, Part 3
    • Transcripts – Part 1, Part 2, Part 3

  • May 7: Lebanon, NH

    • Audio Recording – Introductions
    • Audio Recording – Dr. Lowery and Intro to Dr. Hill
    • Audio Recording – Dr. Hill
    • Audio Recording – Patient and Caregiver Panel
    • Panel Discussion
    • Transcripts – Part 1, Part 2, Part 3, Part 4, Part 5

  • June 11: Copenhagen, Denmark

    • Video and Audio Recordings

  • June 25: Boston, MA

    • Audio Recording
    • Transcript

  • June 25: Birmingham, AL

    • Audio Recordings – Part 1, Part 2, Part 3
    • Transcripts – Part 1, Part 2, Part 3

  • September 10: Baltimore, MD

    • Audio Recording
    • Transcript

  • October 29: Denver, CO

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2

  • October 29: New York/New Jersey

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2

  • November 12: Miami, FL

    • Audio Recordings – Part 1, Part 2
    • Transcripts – Part 1, Part 2

  
  
  
  
  
  

• 2015 Forums

  • January 31, 2015 – San Diego, CA

    • Audio Recordings: Part 1, Part 2, Part 3
    • Transcripts: Part 1, Part 2, Part 3

  • February 28, 2015 (Rare Disease Day) – Miami, FL

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • March 14, 2015 – Nashville, TN

    • Audio Recording
    • Transcript

  • April 18, 2015 – Pittsburgh, PA

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • May 2, 2015 – Washington, DC

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • June 12, 2015 – Vienna, Austria

    • Video and audio recordings

  • June 27, 2015 – Hackensack, NJ

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • July 4, 2015 – Yerevan, Armenia

    • Not available

  • August 15, 2015 – Atlanta, GA

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • August 15, 2015 – Cleveland, OH

    • Audio Recording
    • Transcript

  • October 10, 2015 – Philadelphia, PA

    • Audio Recordings: Part 1, Part 2, Part 3
    • Transcripts: Part 1, Part 2, Part 3

  • October 24, 2015 – New Haven, CT

    • Agenda
    • Audio Recordings: Part 1, Part 2
    • Video Recording: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • November 7, 2015: Westwood, KS

    • Audio Recordings: Part 1, Part 2, Part 3
    • Transcripts: Part 1, Part 2, Part 3

  • November 14, 2015: Indianapolis, IN

    • Audio Recording
    • Transcript

• 2014 Forums

  • February 28, 2014 (Rare Disease Day) – Jacksonville, FL

    • Not available

  • March 29, 2014 – San Francisco, CA

    • Audio Recording
    • Transcript

  • April 26, 2014 – Columbus, OH

    • Audio Recording
    • Transcript

  • May 23, 2014 – São Paulo, Brazil

    • Not available

  • May 24, 2014 – Chicago, IL

    • Audio Recordings: AM Session, PM Session
    • Transcripts: AM Session, PM Session

  • June 21, 2014 – St. Louis, MO

    • Audio Recordings: Part 1, Part 2, Part 3
    • Transcripts: Part 1, Part 2, Part 3

  • July 19, 2014 – Winston-Salem, NC

    • Audio Recording
    • Transcript

  • September 20, 2014 – New York, NY

    • Audio Recordings: AM Session, PM Session
    • Transcripts: Part 1, Part 2

  • October 11, 2014 – Houston, TX

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • October 25, 2014 – Minneapolis, MN

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • December 12, 2014 – Pavia, Italy

    • Visual Presentations: Della Porta, Malcovati
    • Video Recording

  
  
  
  
  
  
  
  
  
  
  

• 2013 Forums

  • February 23, 2013 – Gainesville, FL

    • Video/Slideshow
    • Transcript

  • March 2, 2013 – San Diego, CA

    • Audio Recordings
    • Transcripts: Part 1, Part 2, Part 3, Part 4

  • April 20, 2013 – Atlanta, GA

    • Audio Recordings: Part 1, Part 2, Part 3

  • May 11, 2013 – Berlin, Germany

    • Not available

  • June 15, 2013 – Detroit, MI

    • Audio Recording
    • Transcript

  • July 13, 2013 – Chicago, IL

    • Audio Recordings: AM Session, PM Session
    • Transcripts: AM Session, PM Session

  • August 23, 2013 – Philadelphia, PA

    • Audio Recordings: Part 1, Part 2, Part 3, Part 4
    • Transcripts: Part 1, Part 2, Part 3, Part 4

  • September 21, 2013 – Baltimore, MD

    • Audio Recordings: Part 1, Part 2
    • Transcripts: Part 1, Part 2

  • September 28, 2013 – Long Island, NY

    • Audio Recordings: Part 1, Part 2, Part 3
    • Transcripts: Part 1, Part 2, Part 3

  • October 19, 2013 – Rochester, NY

    • Audio Recordings: AM Session, PM Session
    • Transcripts: Part 1, Part 2

  • October 26, 2013 – Indianapolis, IN

    • Transcripts: Part 1, Part 2