Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Caregiver
I just want a place to exchange and share information on my husband's condition and the best resources that are out there. We are interested in alternative therapies. Currently using lots of vitamins like Turkey tail , zinc etc. papaya leaf extract , red light therapy Mini moxibustion.
Would also like to locate a holistic dr.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.

Patient
My name is Mercedes. I’m 58 years old and I’m a retired Certified Nurse Midwife & former Army nurse. I had fatigue for no apparent reason starting in 2016 that just kept getting worse …I had physic…
Caregiver
My mother's MDS diagnosis was a shock to everyone. After having her annual blood work, her doctor called her into the office for a chat. She told her MD not to say she was sick because she felt too go…
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast…