Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Caregiver
my son his 9 and recently diagnosed mds . so far this is just the beginning
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
In 2021 my internist, who I have been seeing for 15 years, suggested that I see a hematologist because he was concerned about my low RBCs. He referred me to Dr Raphael at NYU Perlmutter. At the time I…

Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
Patient
I was diagnosed with myelodysplastic syndrome in 2010. I had peripheral blood cytopenias (pancytopenia). The first few years I felt good in spite of the fact that I had obvious health problems: bruise…