Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Caregiver
my son his 9 and recently diagnosed mds . so far this is just the beginning
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was diagnosed with MDS in November 2022. My immature white blood cell count was very high, 15.6% - (at 20% it is Leukemia; normal is less than 1%). My doctors brought that down with chemotherapy a…

Patient
I was initially diagnosed with MDS in 2014 after a bone marrow biopsy, although prior blood tests indicate that the start predated this date. Two follow-up BMBs confirmed the diagnosis. My classificat…
Caregiver
My 83 year old father has been failing since May 2025. He has always had low anemia however in the past few weeks he was diagnosed with MDS. He is losing so much weight and is very fragile. He is get…