The MDS Foundation proudly partners with the following organizations
The MDS Foundation proudly partners with the following organizations
Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
One Voice Inspires, Many Voices Transform
Patient
I was diagnosed with MDS ring sideroblasts in 2018. I was on Procrit for two
years and then Luspatercept for two years. my hemoglobin dropped to 7.8
and had my first transfusion on August 1, 2025. I will be starting Imeltestat
on August 20th. I have been dizzy, lightheaded and fatigued.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I am a 77 year old male ( almost 78) and was diagnosed with MDS with rings and a 5q variant. I had received a transfusion for a colon operation last August. The operation went well, and I recovered bu…
Patient
Diagnosed in 8/25.
Just wondering about other people's journey through the process.
Patient
I was initially diagnosed with MDS in 2014 after a bone marrow biopsy, although prior blood tests indicate that the start predated this date. Two follow-up BMBs confirmed the diagnosis. My classificat…
