Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
Diagnosed in 8/25.
Just wondering about other people's journey through the process.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
Bruising was the first visual sign, and next was extreme fatigue. Just not feeling my normal self. Bone marrow test revealed MDS with 5Q minus syndrome. I turned 70 in February of this 2025, and di…

Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege…
Patient
I was diagnosed with myelodysplastic syndrome in 2010. I had peripheral blood cytopenias (pancytopenia). The first few years I felt good in spite of the fact that I had obvious health problems: bruise…