Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
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One Voice Inspires, Many Voices Transform
Patient
Hi, my name is Christina, and my journey with MDS began in 2021. With no previous medical history, my diagnosis came as a complete shock. My family and I quickly searched for a care team so I could begin treatment right away.
In February 2022, I underwent a bone marrow transplant. Since I didn’t have a donor, my doctors determined that a double umbilical cord transplant was the best option for me. It was a daunting path, but one filled with resilience, hope, and the unwavering support of my care team and loved ones.
Fast forward more than three years later, and I’m so grateful to share that I feel (almost) back to my old self. I am endlessly thankful for the brilliant medical team that guided me and for the incredible advancements in science that gave me a second chance at life.
Since then, life has continued to unfold in beautiful ways - I married my wonderful husband, who stood by my side every single day through treatment and recovery, we adopted a dog who fills our home with joy, and we’ve made time to travel and create new memories together.
To anyone walking through their own challenging chapter: please hold on to hope. The road may feel uncertain, but brighter days are ahead. With the right care, the love of those around you, you can step into a future filled with possibility and joy.
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient Advocate
There are moments in life that, quite literally, change you. They take your breath away, cause you to take a hard look at your life, how you are living, and force you to make a choice- to allow the t…
Patient
ive been diagnosed with MDS, 2019, and have 5q deletion, had breast cancer 16 years ago.
was on Revlimid for 5 years but it recently stopped working, was great for the 5 years...then hemoglobin startie…
Caregiver
My mother's MDS diagnosis was a shock to everyone. After having her annual blood work, her doctor called her into the office for a chat. She told her MD not to say she was sick because she felt too go…