Join the Fight Against MDS

Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.

Voices of MDS

Share Your MDS Story

One Voice Inspires, Many Voices Transform

Lea's Story

Patient Advocate

Starting out, I thought I knew what I wanted and where I wanted to be. However, life has a way of shaping, or in my case, reshaping, your path as you walk it. From the time I was young, I felt called to help others, though it took time, and a few twists and turns, to discover the right path.

In 2001, I accepted a receptionist position at a medical education company whose President and CEO also served as the Operating Director of the MDS Foundation. What began as an entry-level role quickly opened my eyes to the healthcare industry, the importance of both patient and professional education, and—most importantly—the vital need to support patients living with MDS and their families.

Over time, my responsibilities grew to include assisting the Foundation with educational resources, meeting planning, and professional programs. As I became more involved, I began to truly understand the Foundation’s mission, the importance of our work, and the profound impact it has on patients, caregivers, families, and healthcare professionals. Today, as Director of Professional Education, I am honored to lead initiatives that support clinicians and researchers, ensuring they have the tools and knowledge to better care for their patients.

For the past 24 years, I’ve grown alongside the Foundation and witnessed firsthand how our efforts change lives. I’ve seen how a simple conversation with our staff can lift the spirits of a patient or caregiver, how our resources can empower someone to speak with their doctor, or how our support can help families navigate the most difficult times. These moments have shown me the true meaning of impact, and I am grateful for the journey that has brought me to this point, as well as the opportunity to continue making a difference in the years ahead.

Share Your MDS Story

Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.

The MDS Foundation proudly partners with the following organizations

MDS AllianceKnow AMLALANThe NHLBI Blood Health Network

Get in touch

Email

support@mds-foundation.org
hcp@mds-foundation.org

Phone within the US

1-(800)-637-0839

Outside the US only

1-(609)-298-1035

Address

The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502

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The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.

© 2024 MDS Foundation. All rights reserved.