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Share Your MDS Story
One Voice Inspires, Many Voices Transform

Lea's Story
Patient Advocate
Starting out, I thought I knew what I wanted and where I wanted to be. However, life has a way of shaping, or in my case, reshaping, your path as you walk it. From the time I was young, I felt called to help others, though it took time, and a few twists and turns, to discover the right path.
In 2001, I accepted a receptionist position at a medical education company whose President and CEO also served as the Operating Director of the MDS Foundation. What began as an entry-level role quickly opened my eyes to the healthcare industry, the importance of both patient and professional education, and—most importantly—the vital need to support patients living with MDS and their families.
Over time, my responsibilities grew to include assisting the Foundation with educational resources, meeting planning, and professional programs. As I became more involved, I began to truly understand the Foundation’s mission, the importance of our work, and the profound impact it has on patients, caregivers, families, and healthcare professionals. Today, as Director of Professional Education, I am honored to lead initiatives that support clinicians and researchers, ensuring they have the tools and knowledge to better care for their patients.
For the past 24 years, I’ve grown alongside the Foundation and witnessed firsthand how our efforts change lives. I’ve seen how a simple conversation with our staff can lift the spirits of a patient or caregiver, how our resources can empower someone to speak with their doctor, or how our support can help families navigate the most difficult times. These moments have shown me the true meaning of impact, and I am grateful for the journey that has brought me to this point, as well as the opportunity to continue making a difference in the years ahead.
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.

Virginia Sue's Story
Patient
ive been diagnosed with MDS, 2019, and have 5q deletion, had breast cancer 16 years ago.
was on Revlimid for 5 years but it recently stopped working, was great for the 5 years...then hemoglobin startie…

Lindsay's Story
Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege…
Janice's Story
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast…
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.